Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

被引：0

作者：

Richard Milne

Katherine I. Morley

Mohamed A. Almarri

Shamim Anwer

Jerome Atutornu

Elena E. Baranova

Paul Bevan

Maria Cerezo

Yali Cong

Alessia Costa

Christine Critchley

Josepine Fernow

Peter Goodhand

Qurratulain Hasan

Aiko Hibino

Gry Houeland

Heidi C. Howard

S. Zakir Hussain

Charlotta Ingvoldstad Malmgren

Vera L. Izhevskaya

Aleksandra Jędrzejak

Cao Jinhong

Megumi Kimura

Erika Kleiderman

Brandi Leach

Keying Liu

Deborah Mascalzoni

Álvaro Mendes

Jusaku Minari

Dianne Nicol

Emilia Niemiec

Christine Patch

Jack Pollard

Barbara Prainsack

Marie Rivière

Lauren Robarts

Jonathan Roberts

Virginia Romano

Haytham A. Sheerah

James Smith

Alexandra Soulier

Claire Steed

Vigdis Stefànsdóttir

Cornelia Tandre

Adrian Thorogood

Torsten H. Voigt

Nan Wang

Anne V. West

Go Yoshizawa

Anna Middleton

机构：

[1] Wellcome Connecting Science,Society and Ethics Research Group

[2] University of Cambridge,Department of Public Health and Primary Care

[3] RAND Europe,Centre for Epidemiology and Biostatistics, Melbourne School of Global and Population Health

[4] Institute of Psychiatry,Department of Forensic Science and Criminology

[5] Psychology & Neuroscience,Medical Ethics Program

[6] King’s College London,Department of Psychological Sciences

[7] The University of Melbourne,Centre for Law and Genetics

[8] Wellcome Sanger Institute,Centre for Research Ethics & Bioethics (CRB)

[9] Dubai Police GHQ,Department of Genetics & Molecular Medicine

[10] Keynote IAS,Faculty of Humanities and Social Sciences

[11] Russian Medical Academy of Continuous Professional Education,Medical Ethics

[12] EMBL-EBI,Department of Public Health and Caring Scienec

[13] Peking University Health Science Center,Department of Molecular Medicine and Surgery

[14] Swinburne University of Technology,Department of Epidemiology and Biostatistics, School of Health Sciences

[15] University of Tasmania,Institute of Innovation Research

[16] Uppsala University,Centre of Genomics and Policy

[17] Ontario Institute for Cancer Research,Public Health, Department of Social Medicine

[18] MaRS Centre,School of Public Health

[19] Kamineni Hospitals,Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA)

[20] SAAZ Genetics,Genomics England

[21] Hirosaki University,Department of Political Science

[22] Lund Universitet,Department of Global Health & Social Medicine

[23] Uppsala University,Institute of Sociology

[24] Karolinska Institutet,Work Research Institute (AFI)

[25] Research Centre for Medical Genetics,Faculty of Education

[26] Independent Scholar,undefined

[27] Wuhan University,undefined

[28] Hitotsubashi University,undefined

[29] McGill University,undefined

[30] Osaka University Graduate School of Medicine,undefined

[31] Peking University Health Science Center,undefined

[32] EURAC,undefined

[33] Institute of Biomedicine,undefined

[34] UnIGENe and CGPP – Centre for Predictive and Preventive Genetics,undefined

[35] IBMC – Institute for Molecular and Cell Biology,undefined

[36] i3S – Instituto de Investigação e Inovação em Saúde,undefined

[37] Universidade do Porto,undefined

[38] Kyoto University,undefined

[39] Queen Mary University of London,undefined

[40] University of Vienna,undefined

[41] King’s College London,undefined

[42] DILTEC,undefined

[43] Sorbonne Nouvelle,undefined

[44] Landspitali,undefined

[45] the National University Hospital of Iceland,undefined

[46] RWTH Aachen University,undefined

[47] Indiana University Maurer School of Law,undefined

[48] Oslo Metropolitan University,undefined

[49] University of Cambridge,undefined

来源：

Genome Medicine | / 13卷

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[1] Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Milne, Richard
Morley, Katherine I.
Almarri, Mohamed A.
Anwer, Shamim
Atutornu, Jerome
Baranova, Elena E.
Bevan, Paul
Cerezo, Maria
Cong, Yali
Costa, Alessia
Critchley, Christine
Fernow, Josepine
Goodhand, Peter
Hasan, Qurratulain
Hibino, Aiko
Houeland, Gry
Howard, Heidi C.
Hussain, S. Zakir
Malmgren, Charlotta Ingvoldstad
Izhevskaya, Vera L.
Jedrzejak, Aleksandra
Jinhong, Cao
Kimura, Megumi
Kleiderman, Erika
Leach, Brandi
Liu, Keying
Mascalzoni, Deborah
Mendes, Alvaro
Minari, Jusaku
Nicol, Dianne
Niemiec, Emilia
Patch, Christine
Pollard, Jack
Prainsack, Barbara
Riviere, Marie
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