Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

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作者
Richard Milne
Katherine I. Morley
Mohamed A. Almarri
Shamim Anwer
Jerome Atutornu
Elena E. Baranova
Paul Bevan
Maria Cerezo
Yali Cong
Alessia Costa
Christine Critchley
Josepine Fernow
Peter Goodhand
Qurratulain Hasan
Aiko Hibino
Gry Houeland
Heidi C. Howard
S. Zakir Hussain
Charlotta Ingvoldstad Malmgren
Vera L. Izhevskaya
Aleksandra Jędrzejak
Cao Jinhong
Megumi Kimura
Erika Kleiderman
Brandi Leach
Keying Liu
Deborah Mascalzoni
Álvaro Mendes
Jusaku Minari
Dianne Nicol
Emilia Niemiec
Christine Patch
Jack Pollard
Barbara Prainsack
Marie Rivière
Lauren Robarts
Jonathan Roberts
Virginia Romano
Haytham A. Sheerah
James Smith
Alexandra Soulier
Claire Steed
Vigdis Stefànsdóttir
Cornelia Tandre
Adrian Thorogood
Torsten H. Voigt
Nan Wang
Anne V. West
Go Yoshizawa
Anna Middleton
机构
[1] Wellcome Connecting Science,Society and Ethics Research Group
[2] University of Cambridge,Department of Public Health and Primary Care
[3] RAND Europe,Centre for Epidemiology and Biostatistics, Melbourne School of Global and Population Health
[4] Institute of Psychiatry,Department of Forensic Science and Criminology
[5] Psychology & Neuroscience,Medical Ethics Program
[6] King’s College London,Department of Psychological Sciences
[7] The University of Melbourne,Centre for Law and Genetics
[8] Wellcome Sanger Institute,Centre for Research Ethics & Bioethics (CRB)
[9] Dubai Police GHQ,Department of Genetics & Molecular Medicine
[10] Keynote IAS,Faculty of Humanities and Social Sciences
[11] Russian Medical Academy of Continuous Professional Education,Medical Ethics
[12] EMBL-EBI,Department of Public Health and Caring Scienec
[13] Peking University Health Science Center,Department of Molecular Medicine and Surgery
[14] Swinburne University of Technology,Department of Epidemiology and Biostatistics, School of Health Sciences
[15] University of Tasmania,Institute of Innovation Research
[16] Uppsala University,Centre of Genomics and Policy
[17] Ontario Institute for Cancer Research,Public Health, Department of Social Medicine
[18] MaRS Centre,School of Public Health
[19] Kamineni Hospitals,Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA)
[20] SAAZ Genetics,Genomics England
[21] Hirosaki University,Department of Political Science
[22] Lund Universitet,Department of Global Health & Social Medicine
[23] Uppsala University,Institute of Sociology
[24] Karolinska Institutet,Work Research Institute (AFI)
[25] Research Centre for Medical Genetics,Faculty of Education
[26] Independent Scholar,undefined
[27] Wuhan University,undefined
[28] Hitotsubashi University,undefined
[29] McGill University,undefined
[30] Osaka University Graduate School of Medicine,undefined
[31] Peking University Health Science Center,undefined
[32] EURAC,undefined
[33] Institute of Biomedicine,undefined
[34] UnIGENe and CGPP – Centre for Predictive and Preventive Genetics,undefined
[35] IBMC – Institute for Molecular and Cell Biology,undefined
[36] i3S – Instituto de Investigação e Inovação em Saúde,undefined
[37] Universidade do Porto,undefined
[38] Kyoto University,undefined
[39] Queen Mary University of London,undefined
[40] University of Vienna,undefined
[41] King’s College London,undefined
[42] DILTEC,undefined
[43] Sorbonne Nouvelle,undefined
[44] Landspitali,undefined
[45] the National University Hospital of Iceland,undefined
[46] RWTH Aachen University,undefined
[47] Indiana University Maurer School of Law,undefined
[48] Oslo Metropolitan University,undefined
[49] University of Cambridge,undefined
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