Citizen engagement and public trust in genomic data sharing: recommendations for trustworthiness from an experts workshop organised by B1MG

被引：0

作者：

van El, Carla ^{[1
]}

Vermeulen, Eric ^{[2
]}

Bale, Mark ^{[2
]}

Beusink, Miriam ^{[3
,4
]}

Bitsch, Lise ^{[5
]}

Coutts, Nikki ^{[6
]}

van Delden, Hans ^{[7
]}

Frankova, Vera ^{[8
]}

Gross, Edith ^{[9
]}

van Hoof, Wannes ^{[10
]}

Horgan, Denis ^{[11
]}

Machado, Helena ^{[12
]}

Mayrhofer, Michaela ^{[13
]}

Merchant, Arshiya ^{[14
]}

Patch, Christine ^{[15
]}

Peterlin, Borut ^{[16
]}

Pittens, Carina ^{[17
]}

Prainsack, Barbara ^{[18
]}

Samuel, Gabby ^{[19
,20
]}

Kok, Ruben ^{[21
]}

Scollen, Serena

机构：

[1] AmsterdamUMC, Human Genet, Amsterdam, Netherlands

[2] VSOP, Soest, Netherlands

[3] Publ Policy Projects, Genom, London, England

[4] Hlth RI, Utrecht, Netherlands

[5] Danish Board Technol Fdn, Hvidovre, Denmark

[6] ELIXIR Hub, Cambridge, England

[7] UMC Utrecht, Dept Bioeth & Hlth Humanities, Utrecht, Netherlands

[8] Charles Univ Prague, Inst Med Human, Fac Med 1, Prague, Czech Republic

[9] EURORDIS, Hlth & Social Sci, Paris, France

[10] Sciensano, Brussels, Belgium

[11] EAPM, Brussels, Belgium

[12] Univ Minho, Inst Social Sci, Dept Sociol, Braga, Portugal

[13] BBMRI ERIC, Graz, Austria

[14] ELIXIR, Human Genom Translat Data, Cambs, England

[15] Wellcome Genome Campus, Hinxton, England

[16] Univ Med Ctr Ljubljana, Clin Inst Genom Med, Ljubljana, Slovenia

[17] Vrije Univ Amsterdam, Athena Inst, Amsterdam, Netherlands

[18] Univ Vienna, Dept Polit Sci, Vienna, Austria

[19] Kings Coll London, London, England

[20] Univ Oxford, Oxford, England

[21] DTL Projects & Hlth RI, Utrecht, Netherlands

来源：

EUROPEAN JOURNAL OF HUMAN GENETICS | 2024年 / 32卷

基金：

欧盟地平线“2020”;

关键词：

D O I：

暂无

中图分类号：

Q5 [生物化学]; Q7 [分子生物学];

学科分类号：

071010 ; 081704 ;

摘要：

P24.016.D

引用

页码：762 / 763

页数：2