Exposing the Backstage: Critical Reflections on a Longitudinal Qualitative Study of Residents' Care Networks in Assisted Living

被引:13
|
作者
Kemp, Candace L. [1 ,2 ]
Ball, Mary M. [5 ]
Morgan, Jennifer Craft [1 ]
Doyle, Patrick J. [6 ]
Burgess, Elisabeth O. [1 ,2 ]
Dillard, Joy A. [3 ]
Barmon, Christina E. [4 ]
Fitzroy, Andrea F. [1 ,2 ]
Helmly, Victoria E. [1 ]
Avent, Elizabeth S. [1 ]
Perkins, Molly M. [5 ,7 ]
机构
[1] Georgia State Univ, Inst Gerontol, POB 3984, Atlanta, GA 30302 USA
[2] Georgia State Univ, Dept Sociol, Atlanta, GA 30303 USA
[3] Georgia State Univ, Convoys Care Study, Atlanta, GA 30303 USA
[4] Georgia State Univ, Atlanta, GA 30303 USA
[5] Emory Univ, Sch Med, Dept Med, Div Gen & Geriatr Med, Atlanta, GA 30322 USA
[6] Brightview Senior Living, Alzheimer Dementia Serv, Baltimore, MD USA
[7] Birmingham Atlanta Vet Affairs Geriatr Res Educ &, Res, Atlanta, GA USA
基金
美国国家卫生研究院;
关键词
caregivers; caretaking; families; long-term health care; longitudinal studies; grounded theory; ethnography; southeastern United States; LONG-TERM-CARE; SENSITIVE TOPICS; MARRIED-COUPLES; INFORMAL CARE; OF-LIFE; ETHICS; RESEARCHER; DEMENTIA; TRANSITIONS; DISEASE;
D O I
10.1177/1049732316668817
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
In this article, we analyze the research experiences associated with a longitudinal qualitative study of residents' care networks in assisted living. Using data from researcher meetings, field notes, and memos, we critically examine our design and decision making and accompanying methodological implications. We focus on one complete wave of data collection involving 28 residents and 114 care network members in four diverse settings followed for 2 years. We identify study features that make our research innovative, but that also represent significant challenges. They include the focus and topic; settings and participants; scope and design complexity; nature, modes, frequency, and duration of data collection; and analytic approach. Each feature has methodological implications, including benefits and challenges pertaining to recruitment, retention, data collection, quality, and management, research team work, researcher roles, ethics, and dissemination. Our analysis demonstrates the value of our approach and of reflecting on and sharing methodological processes for cumulative knowledge building.
引用
收藏
页码:1190 / 1202
页数:13
相关论文
共 50 条
  • [21] Longitudinal qualitative study of living with neurogenic claudication
    Griffiths, Frances
    Srikesavan, Cynthia
    Ward, Lesley
    Boniface, Graham
    Williamson, Esther
    Lamb, Sarah E.
    BMJ OPEN, 2022, 12 (09):
  • [22] A qualitative study of the benefits and challenges of different models of extra care housing for residents living with dementia
    Oatley, Rebecca
    Atkinson, Teresa
    DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2024, 23 (06): : 981 - 1000
  • [23] Family perceptions of mouth care for assisted living residents with dementia: Implications for care
    Lowman, Sarah G.
    Zimmerman, Sheryl
    Ward, Kimberly
    Weintraub, Jane A.
    GERIATRIC NURSING, 2021, 42 (04) : 926 - 934
  • [24] Person-Centered Dementia Care and Sleep in Assisted Living Residents With Dementia: A Pilot Study
    Li, Junxin
    Grandner, Michael A.
    Chang, Yu-Ping
    Jungquist, Carla
    Porock, Davina
    BEHAVIORAL SLEEP MEDICINE, 2017, 15 (02) : 97 - 113
  • [25] QUALITATIVE STUDY IDENTIFIES DEMENTIA TRAINING NEEDS OF CARE WORKERS IN ASSISTED LIVING AND PERSONAL CARE AGENCIES
    Andersen, Troy
    Kaplan, Daniel
    Foster, Norman
    Stefanucci, Jeanine
    Moffitt, Chad
    Dremann, Andrea
    Bechek, Bonnie
    INNOVATION IN AGING, 2024, 8 : 400 - 400
  • [26] Improving Primary Health Care for Residents Living in Assisted Living: Evidence for Practice and Policy
    Cann, Patricia
    McCloskey, Rose
    CANADIAN JOURNAL ON AGING-REVUE CANADIENNE DU VIEILLISSEMENT, 2021, 40 (02): : 354 - 363
  • [27] Learning to Deliver Care in a Medical Home: A Qualitative Analysis of Residents' Reflections on Practice
    Kind, Terry
    Goldman, Ellen
    Fratantoni, Karen
    Wiedermann, Bernhard L.
    Agrawal, Dewesh
    Coddington, Dale
    CLINICAL PEDIATRICS, 2014, 53 (07) : 658 - 665
  • [28] Barriers to Promoting Advance Care Planning for Residents Living in a Sanatorium for Hansen’s Disease: A Qualitative Study of Residents and Staff in Japan
    Tsuruwaka M.
    Yokose R.
    Asian Bioethics Review, 2018, 10 (3) : 199 - 217
  • [29] Predictors of functional impairment in residents of assisted-living facilities: The Maryland Assisted Living Study
    Burdick, DJ
    Rosenblatt, A
    Samus, QM
    Steele, C
    Baker, A
    Harper, M
    Mayer, L
    Brandt, J
    Rabins, P
    Lyketsos, CG
    JOURNALS OF GERONTOLOGY SERIES A-BIOLOGICAL SCIENCES AND MEDICAL SCIENCES, 2005, 60 (02): : 258 - 264
  • [30] The Impact of INTERACT on the Quality of Care and Costs for Residents in Assisted Living Settings
    Fairchild, Thomas J.
    Chen, Hsueh-Fen
    Bedwell, Shelby
    Mains, Douglas
    O'Neil, Kevin W.
    GERONTOLOGIST, 2015, 55