Exposing the Backstage: Critical Reflections on a Longitudinal Qualitative Study of Residents' Care Networks in Assisted Living

被引:13
|
作者
Kemp, Candace L. [1 ,2 ]
Ball, Mary M. [5 ]
Morgan, Jennifer Craft [1 ]
Doyle, Patrick J. [6 ]
Burgess, Elisabeth O. [1 ,2 ]
Dillard, Joy A. [3 ]
Barmon, Christina E. [4 ]
Fitzroy, Andrea F. [1 ,2 ]
Helmly, Victoria E. [1 ]
Avent, Elizabeth S. [1 ]
Perkins, Molly M. [5 ,7 ]
机构
[1] Georgia State Univ, Inst Gerontol, POB 3984, Atlanta, GA 30302 USA
[2] Georgia State Univ, Dept Sociol, Atlanta, GA 30303 USA
[3] Georgia State Univ, Convoys Care Study, Atlanta, GA 30303 USA
[4] Georgia State Univ, Atlanta, GA 30303 USA
[5] Emory Univ, Sch Med, Dept Med, Div Gen & Geriatr Med, Atlanta, GA 30322 USA
[6] Brightview Senior Living, Alzheimer Dementia Serv, Baltimore, MD USA
[7] Birmingham Atlanta Vet Affairs Geriatr Res Educ &, Res, Atlanta, GA USA
基金
美国国家卫生研究院;
关键词
caregivers; caretaking; families; long-term health care; longitudinal studies; grounded theory; ethnography; southeastern United States; LONG-TERM-CARE; SENSITIVE TOPICS; MARRIED-COUPLES; INFORMAL CARE; OF-LIFE; ETHICS; RESEARCHER; DEMENTIA; TRANSITIONS; DISEASE;
D O I
10.1177/1049732316668817
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
In this article, we analyze the research experiences associated with a longitudinal qualitative study of residents' care networks in assisted living. Using data from researcher meetings, field notes, and memos, we critically examine our design and decision making and accompanying methodological implications. We focus on one complete wave of data collection involving 28 residents and 114 care network members in four diverse settings followed for 2 years. We identify study features that make our research innovative, but that also represent significant challenges. They include the focus and topic; settings and participants; scope and design complexity; nature, modes, frequency, and duration of data collection; and analytic approach. Each feature has methodological implications, including benefits and challenges pertaining to recruitment, retention, data collection, quality, and management, research team work, researcher roles, ethics, and dissemination. Our analysis demonstrates the value of our approach and of reflecting on and sharing methodological processes for cumulative knowledge building.
引用
收藏
页码:1190 / 1202
页数:13
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