Best Practices for Returning Research Findings to Participants: Methodological and Ethical Considerations for Communication Researchers

被引:9
|
作者
Hintz, Elizabeth A. [1 ]
Dean, Marleah [1 ]
机构
[1] Univ S Florida, Dept Commun, 4202 E Fowler Ave, Tampa, FL 33620 USA
关键词
SHARING DATA; DISCLOSURE;
D O I
10.1080/19312458.2019.1650165
中图分类号
G2 [信息与知识传播];
学科分类号
05 ; 0503 ;
摘要
Many research studies have offered ethical guidelines for the recruiting of participants, solicitation of informed consent, and harvesting of data from communities and individuals. However, few guidelines exist for returning research findings to participants although participants often desire access to the results of the studies in which they participate, and researchers are often interested in providing results. Furthermore, little research has considered the benefits and challenges of returning findings to participants outside of bioethics contexts. The decision to return findings to the individuals and/or communities from which they were taken upholds three key ethical principles, which work together to form the analytical framework for this study: respect for persons/autonomy, non-maleficence, and beneficence. Therefore, this study offers "best practices" for returning findings to participants as an ethical obligation for communication researchers. By utilizing the "expert panel process" to benchmark a panel of published expert opinions establishing ethical standards within human subject research, the purpose of this study is to aggregate and synthesize existing recommendations via grounded theory to produce novel translational insights for scholars not engaged in clinical health research. We conclude by providing seven best practices for effectively returning findings to participants based on our synthesis of the expert sources.
引用
收藏
页码:38 / 54
页数:17
相关论文
共 50 条
  • [31] Ethical considerations of acceptability of biological sampling by participants in a research study
    Noisel, N.
    Caux, C.
    Carrier, G.
    Bouchard, M.
    TOXICOLOGY LETTERS, 2010, 196 : S104 - S104
  • [32] Emotional Sensibility: Exploring the Methodological and Ethical Implications of Research Participants' Emotions
    Pearlman, W. E. N. D. Y.
    AMERICAN POLITICAL SCIENCE REVIEW, 2023, 117 (04) : 1241 - 1254
  • [33] Using interviews to research body size: methodological and ethical considerations
    Lloyd, Jenny
    Hopkins, Peter
    AREA, 2015, 47 (03) : 305 - 310
  • [34] Navigating cross-cultural research: methodological and ethical considerations
    Broesch, Tanya
    Crittenden, Alyssa N.
    Beheim, Bret A.
    Blackwell, Aaron D.
    Bunce, John A.
    Colleran, Heidi
    Hagel, Kristin
    Kline, Michelle
    McElreath, Richard
    Nelson, Robin G.
    Pisor, Anne C.
    Prall, Sean
    Pretelli, Ilaria
    Purzycki, Benjamin
    Quinn, Elizabeth A.
    Ross, Cody
    Scelza, Brooke
    Starkweather, Kathrine
    Stieglitz, Jonathan
    Mulder, Monique Borgerhoff
    PROCEEDINGS OF THE ROYAL SOCIETY B-BIOLOGICAL SCIENCES, 2020, 287 (1935)
  • [35] #Academicchatter: methodological and ethical considerations for conducting Twitter research in education
    Ball, Karly B.
    Traxler, Rachel Elizabeth
    INTERNATIONAL JOURNAL OF RESEARCH & METHOD IN EDUCATION, 2024, 47 (04) : 362 - 377
  • [36] Ethical framework for the detection, management and communication of incidental findings in imaging studies, building on an interview study of researchers’ practices and perspectives
    Eline M. Bunnik
    Lisa van Bodegom
    Wim Pinxten
    Inez D. de Beaufort
    Meike W. Vernooij
    BMC Medical Ethics, 18
  • [37] Shoulder-to-shoulder research with children: Methodological and ethical considerations
    Griffin, Krista M.
    Lahman, Maria K. E.
    Opitz, Michael F.
    JOURNAL OF EARLY CHILDHOOD RESEARCH, 2016, 14 (01) : 18 - 27
  • [38] Methodological and Ethical Considerations in the Use of Chordate Embryos in Biomedical Research
    Campitelli, Laura Maria Mendes
    Lopes, Karina Pereira
    de Lima, Isabela Lemos
    Ferreira, Flavia Batista
    Isidoro, Nayara Delfim
    Ferreira, Giovana Magalhaes
    Ponce, Maria Clara Fioravanti
    Ferreira, Milene Caroline de Oliveira
    Mendes, Ludmilla Silva
    Marcelino, Pedro Henrique Ribeiro
    Neves, Matheus Morais
    Klein, Sandra Gabriela
    Fonseca, Belchiolina Beatriz
    Polveiro, Richard Costa
    da Silva, Murilo Vieira
    INTERNATIONAL JOURNAL OF MOLECULAR SCIENCES, 2025, 26 (06)
  • [39] Methodological rigor and ethical considerations in Internet-mediated research
    Mathy, RM
    Kerr, DL
    Haydin, BM
    PSYCHOTHERAPY, 2003, 40 (1-2) : 77 - 85
  • [40] USER INVOLVEMENT IN AGING RESEARCH: PRACTICAL, ETHICAL, AND METHODOLOGICAL CONSIDERATIONS
    不详
    GERONTOLOGIST, 2015, 55 : 749 - 749