Millennium Cohort Study;
autism spectrum disorder;
secondary data analysis;
applied behaviour analysis;
UK;
service delivery;
quality of life;
parents;
EARLY BEHAVIORAL INTERVENTION;
SPECTRUM DISORDER;
HIGH-RISK;
DIAGNOSIS;
EXPERIENCES;
PARENTS;
ASD;
AGE;
D O I:
10.3109/17518423.2014.964378
中图分类号:
R74 [神经病学与精神病学];
学科分类号:
摘要:
Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD. Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n = 18 522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age). Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing. Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.
机构:
Coventry Univ, Ctr Communities & Social Justice, Coventry, W Midlands, EnglandCoventry Univ, Ctr Communities & Social Justice, Coventry, W Midlands, England
Brady, Geraldine
Lowe, Pam
论文数: 0引用数: 0
h-index: 0
机构:Coventry Univ, Ctr Communities & Social Justice, Coventry, W Midlands, England
Lowe, Pam
Lauritzen, Sonja Olin
论文数: 0引用数: 0
h-index: 0
机构:
Stockholm Univ, Dept Educ, Stockholm, SwedenCoventry Univ, Ctr Communities & Social Justice, Coventry, W Midlands, England
机构:
Washington State Inst Publ Policy, Olympia, WA 98504 USAWashington State Inst Publ Policy, Olympia, WA 98504 USA
Lee, Stephanie
Drake, Elizabeth
论文数: 0引用数: 0
h-index: 0
机构:
Washington State Inst Publ Policy, Olympia, WA 98504 USAWashington State Inst Publ Policy, Olympia, WA 98504 USA
Drake, Elizabeth
Pennucci, Annie
论文数: 0引用数: 0
h-index: 0
机构:
Washington State Inst Publ Policy, Olympia, WA 98504 USAWashington State Inst Publ Policy, Olympia, WA 98504 USA
Pennucci, Annie
Bjornstad, Gretchen
论文数: 0引用数: 0
h-index: 0
机构:
Social Res Unit, Darlington, Durham, England
Kings Coll London, Inst Psychiat, London, EnglandWashington State Inst Publ Policy, Olympia, WA 98504 USA
Bjornstad, Gretchen
Edovald, Triin
论文数: 0引用数: 0
h-index: 0
机构:
Social Res Unit, Darlington, Durham, England
Kings Coll London, Inst Psychiat, London, EnglandWashington State Inst Publ Policy, Olympia, WA 98504 USA