The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing

被引:34
|
作者
Dillenburger, Karola [1 ]
Jordan, Julie-Ann [1 ]
McKerr, Lyn [1 ]
Keenan, Mickey [2 ]
机构
[1] Queens Univ Belfast, Sch Educ, Ctr Behav Anal, Belfast BT7 1HL, Antrim, North Ireland
[2] Univ Ulster, Sch Psychol, Coleraine BT52 1SA, Londonderry, North Ireland
关键词
Millennium Cohort Study; autism spectrum disorder; secondary data analysis; applied behaviour analysis; UK; service delivery; quality of life; parents; EARLY BEHAVIORAL INTERVENTION; SPECTRUM DISORDER; HIGH-RISK; DIAGNOSIS; EXPERIENCES; PARENTS; ASD; AGE;
D O I
10.3109/17518423.2014.964378
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD. Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n = 18 522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age). Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing. Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.
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页码:37 / 46
页数:10
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