Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

被引:6
|
作者
de Veer, Anke J. E. [1 ]
Slev, Vina N. [2 ,3 ]
Pasman, H. Roeline [2 ,3 ]
Verdonck-de Leeuw, Irma M. [4 ,5 ,6 ]
Francke, Anneke L. [1 ,7 ,8 ]
van Uden-Kraan, Cornelia F. [4 ,5 ]
机构
[1] Netherlands Inst Hlth Serv Res Nivel, Utrecht, Netherlands
[2] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[3] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Expertise Ctr Palliat Care, Amsterdam, Netherlands
[4] Vrije Univ Amsterdam Publ Hlth, Fac Behav & Movement Sci, Dept Clin Neuro & Dev Psychol, Amsterdam, Netherlands
[5] Canc Ctr Amsterdam, Amsterdam, Netherlands
[6] Vrije Univ Amsterdam, Amsterdam UMC, Dept Otolaryngol Head & Neck Surg, Amsterdam, Netherlands
[7] Vrije Univ Amsterdam, Amsterdam UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[8] Expertise Ctr Palliat Care, Amsterdam, Netherlands
关键词
self-management; palliative care; patient activation; quality of life; eHealth; EORTC QLQ-C15-PAL QUESTIONNAIRE; SHORT-FORM; ACTIVATION; VERSION; PEOPLE; VALIDATION; OUTCOMES; CARE;
D O I
10.1188/20.ONF.305-317
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
OBJECTIVES: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness. SAMPLE& SETTING: 36 patients receiving support in the home setting. METHODS & VARIABLES: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life. RESULTS: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses' expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found. IMPLICATIONS FOR NURSING: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.
引用
收藏
页码:305 / 317
页数:13
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