Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

被引:6
|
作者
de Veer, Anke J. E. [1 ]
Slev, Vina N. [2 ,3 ]
Pasman, H. Roeline [2 ,3 ]
Verdonck-de Leeuw, Irma M. [4 ,5 ,6 ]
Francke, Anneke L. [1 ,7 ,8 ]
van Uden-Kraan, Cornelia F. [4 ,5 ]
机构
[1] Netherlands Inst Hlth Serv Res Nivel, Utrecht, Netherlands
[2] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[3] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Expertise Ctr Palliat Care, Amsterdam, Netherlands
[4] Vrije Univ Amsterdam Publ Hlth, Fac Behav & Movement Sci, Dept Clin Neuro & Dev Psychol, Amsterdam, Netherlands
[5] Canc Ctr Amsterdam, Amsterdam, Netherlands
[6] Vrije Univ Amsterdam, Amsterdam UMC, Dept Otolaryngol Head & Neck Surg, Amsterdam, Netherlands
[7] Vrije Univ Amsterdam, Amsterdam UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[8] Expertise Ctr Palliat Care, Amsterdam, Netherlands
关键词
self-management; palliative care; patient activation; quality of life; eHealth; EORTC QLQ-C15-PAL QUESTIONNAIRE; SHORT-FORM; ACTIVATION; VERSION; PEOPLE; VALIDATION; OUTCOMES; CARE;
D O I
10.1188/20.ONF.305-317
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
OBJECTIVES: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness. SAMPLE& SETTING: 36 patients receiving support in the home setting. METHODS & VARIABLES: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life. RESULTS: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses' expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found. IMPLICATIONS FOR NURSING: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.
引用
收藏
页码:305 / 317
页数:13
相关论文
共 50 条
  • [11] Building Capacity in Cancer Nurses to Deliver Self-management Support: A Call for Action Paper
    Chan, Raymond Javan
    Mayer, Deborah K.
    Koczwara, Bogda
    Loerzel, Victoria
    Charalambous, Andreas
    Agbejule, Oluwaseyifunmi Andi
    Howell, Doris
    CANCER NURSING, 2020, 43 (05) : 341 - 342
  • [12] Development of an International Competency Framework for Nurses in the Provision of Self-management Support to Cancer Populations
    Chan, Raymond J.
    Agbejule, Oluwaseyifunmi Andi
    Crawford-Williams, Fiona
    Yates, Patsy M.
    Koczwara, Bogda
    Erickson, Jeanne
    So, Winnie K. W.
    Howell, Doris
    CANCER NURSING, 2023, 46 (06) : 477 - 487
  • [13] Validation of a structured interview for the assessment of diabetes self-management
    Harris, MA
    Wysocki, T
    Sadler, M
    Wilkinson, K
    Harvey, LM
    Buckloh, LM
    Mauras, N
    White, NH
    DIABETES CARE, 2000, 23 (09) : 1301 - 1304
  • [14] A VIRTUAL EHEALTH INTERVENTION FOR DIABETES SELF-MANAGEMENT AND SUPPORT
    Vorderstrasse, A.
    Feinglos, M.
    Pereira, K.
    Levy, J.
    Hassell, N.
    Nicollerat, J.
    Johnson, C.
    DIABETES TECHNOLOGY & THERAPEUTICS, 2014, 16 : A115 - A115
  • [15] IMPLEMENTATION AND FEASIBILITY OF A DIGITIZED SELF-MANAGEMENT INTERVENTION TARGETING CANCER PATIENTS
    Olesen, M. L.
    Uffelmann, J.
    Zoffmann, V.
    INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER, 2019, 29 : A578 - A578
  • [16] Interventions to support Self-management in Cancer Pain
    ElMokhallalati, Yousuf
    Mulvey, Matthew R.
    Bennett, Michael I.
    SCHMERZ, 2019, 33 (03): : 255 - 260
  • [17] Self-management, self-management support needs and interventions in advanced cancer: a scoping review
    Budhwani, Suman
    Wodchis, Walter P.
    Zimmermann, Camilla
    Moineddin, Rahim
    Howell, Doris
    BMJ SUPPORTIVE & PALLIATIVE CARE, 2019, 9 (01) : 12 - 25
  • [18] Interventions to support self-management in cancer pain
    ElMokhallalati, Yousuf
    Mulvey, Matthew R.
    Bennett, Michael I.
    PAIN REPORTS, 2018, 3 (06)
  • [19] A self-management support intervention for patients with atrial fibrillation: a randomized controlled pilot trial
    Stefan Jobst
    Lynn Leppla
    Stefan Köberich
    Pilot and Feasibility Studies, 6
  • [20] A self-management support intervention for patients with atrial fibrillation: a randomized controlled pilot trial
    Jobst, Stefan
    Leppla, Lynn
    Koeberich, Stefan
    PILOT AND FEASIBILITY STUDIES, 2020, 6 (01)