Informed consent and patient registry for the rare disease community: Editorial

被引：4

作者：

Grady, Christine ^{[2
]}

Rubinstein, Yaffa R. ^{[1
]}

Groft, Stephen C. ^{[1
]}

机构：

[1] NIH, Off Rare Dis Res, Bethesda, MD 20892 USA

[2] NIH, Ctr Clin, Dept Bioeth, Head Sect Human Subjects Res, Bethesda, MD 20892 USA

来源：

关键词：

Informed consent; Patient registry; Rare disease; Rare disease community; Patient advocacy group;

D O I：

10.1016/j.cct.2011.10.005

中图分类号：

R-3 [医学研究方法]; R3 [基础医学];

学科分类号：

1001 ;

摘要：

引用

页码：3 / 4

页数：2

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