Informed consent and patient registry for the rare disease community: Editorial

被引：4
|
作者：
Grady, Christine [2 ]
Rubinstein, Yaffa R. [1 ]
Groft, Stephen C. [1 ]
机构：
[1] NIH, Off Rare Dis Res, Bethesda, MD 20892 USA
[2] NIH, Ctr Clin, Dept Bioeth, Head Sect Human Subjects Res, Bethesda, MD 20892 USA
来源：
CONTEMPORARY CLINICAL TRIALS | 2012年 / 33卷 / 01期
关键词：
Informed consent; Patient registry; Rare disease; Rare disease community; Patient advocacy group;
D O I：
10.1016/j.cct.2011.10.005
中图分类号：
R-3 [医学研究方法]; R3 [基础医学];
学科分类号：
1001 ;
摘要：
引用
收藏
页码：3 / 4
页数：2
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