Where there is no evidence: A registry for rare benign diseases in Germany

被引：0
|
作者：
Micke, O.
Seegenschmiedt, M. H.
Hesselmann, S.
Makoski, H. -B
机构：
[1] Franziskus Hosp, Klin Strahlentherapie & Radioonkol, Bielefeld, Germany
[2] Alfried Krupp Hosp, Klin Radioonkol Strahlentherapie & Nukl Med, Essen, Germany
[3] Clemens Hosp, Abt Strahlentherapie, Munster, Germany
[4] Klinikum Duisburg, Strahlenklin, Duisburg, Germany
来源：
STRAHLENTHERAPIE UND ONKOLOGIE | 2006年 / 182卷
关键词：
D O I：
暂无
中图分类号：
R73 [肿瘤学];
学科分类号：
100214 ;
摘要：
引用
收藏
页码：68 / 69
页数：2
相关论文
共 50 条
  • [31] National platform for Rare Diseases Data Registry of Japan
    Furusawa, Yoshihiko
    Yamaguchi, Izumi
    Yagishita, Naoko
    Tanzawa, Kazumasa
    Matsuda, Fumihiko
    Yamano, Yoshihisa
    Yamada, Ryo
    Tabara, Yasuharu
    Kamatani, Yoichiro
    Kawaguchi, Syuji
    Kosugi, Shinji
    Higasa, Koichiro
    Matsubara, Yoichi
    Matsumoto, Naomichi
    Aasano, Yoshihiro
    Nishino, Ichizo
    Nakamura, Harumasa
    Takano, Atsushi
    Iot, Motoi
    Sakai, Shinya
    LEARNING HEALTH SYSTEMS, 2019, 3 (03):
  • [32] A first description of the Colombian national registry for rare diseases
    Mateus H.E.
    Pérez A.M.
    Mesa M.L.
    Escobar G.
    Gálvez J.M.
    Montaño J.I.
    Ospina M.L.
    Laissue P.
    BMC Research Notes, 10 (1)
  • [33] The Battlefield of Rare Diseases: Where Uncommon Insights Are Common
    Gahl, William A.
    SCIENCE TRANSLATIONAL MEDICINE, 2012, 4 (154)
  • [34] Radiation therapy for benign diseases: Patterns of care study in Germany
    Seegenschmiedt, MH
    Katalinic, A
    Makoski, HB
    Haase, W
    Gademann, G
    Hassenstein, E
    INTERNATIONAL JOURNAL OF RADIATION ONCOLOGY BIOLOGY PHYSICS, 2000, 47 (01): : 195 - 202
  • [35] Radiation therapy of benign diseases: Patterns of care study in Germany
    Seegenschmiedt, MH
    Katalinic, A
    Makoski, HB
    Haase, W
    Gademann, G
    Hassenstein, E
    STRAHLENTHERAPIE UND ONKOLOGIE, 1999, 175 (11) : 541 - 547
  • [36] The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
    Taruscio, Domenica
    Vittozzi, Luciano
    Rocchetti, Adele
    Torreri, Paola
    Ferrari, Luca
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2018, 15 (07)
  • [37] Rare diseases. Funding programs in Germany and Europe
    Wetterauer, B.
    Schuster, R.
    BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ, 2008, 51 (05) : 519 - 528
  • [38] Speak up for people with rare diseases: ACHSE. ACHSE, Rare Diseases Germany, and its network
    Mundlos, C.
    INTERNIST, 2018, 59 (12): : 1327 - 1334
  • [39] A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry
    Monica Mazzucato
    Laura Visonà Dalla Pozza
    Silvia Manea
    Cinzia Minichiello
    Paola Facchin
    Orphanet Journal of Rare Diseases, 9
  • [40] A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region's rare diseases registry
    Mazzucato, Monica
    Dalla Pozza, Laura Visona
    Manea, Silvia
    Minichiello, Cinzia
    Facchin, Paola
    ORPHANET JOURNAL OF RARE DISEASES, 2014, 9
12345