A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry

被引：0
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作者：
Monica Mazzucato
Laura Visonà Dalla Pozza
Silvia Manea
Cinzia Minichiello
Paola Facchin
机构：
[1] Rare Diseases Registry,Rare Diseases Coordinating Center
[2] Veneto Region,undefined
来源：
Orphanet Journal of Rare Diseases | / 9卷
关键词：
Rare diseases; Registry; Epidemiology; Public health indicators;
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