Self-reported needs of caregivers of people with Autism Spectrum Disorder

被引：6
|
作者：
Colombet, Claire [1 ]
Alcaraz, Celine [1 ]
de la Tribonniere, Xavier [2 ,3 ]
Morsa, Maxime [4 ]
Rattaz, Cecile [1 ]
Baghdadli, Amaria [1 ,3 ,5 ]
机构：
[1] CHU Montpellier, Ctr Ressource Autisme Languedoc, Roussillon & Ctr Excellence Autisme & Troubles Ne, Montpellier, France
[2] CHU Montpellier, Unite Transversale Educ Patient UTEP, Montpellier, France
[3] Univ Montpellier, Fac Med, Montpellier, France
[4] Univ Paris Sorbonne Paris Nord, Lab Educ & Prat Sante UR3412, Bobigny, France
[5] Univ Paris Saclay, UVSQ, INSERM, CESP, F-94807 Villejuif, France
来源：
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 07期
关键词：
Autism spectrum disorder; Patient education; Caregivers; Needs; Self-care; Self-management; QUALITY-OF-LIFE; EDUCATION-PROGRAM; PATIENT EDUCATION; CHILDREN; PARENTS; ADOLESCENTS; FAMILIES; SUPPORT; EXPERIENCES; CARE;
D O I：
10.1007/s10803-022-05499-x
中图分类号：
B844 [发展心理学（人类心理学）];
学科分类号：
040202 ;
摘要：
Objectives Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs. Methods This was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France. Results 1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support. Conclusions This study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.
引用
收藏
页码：2798 / 2805
页数：8
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