Self-reported needs of caregivers of people with Autism Spectrum Disorder

被引：6

作者：

Colombet, Claire ^{[1
]}

Alcaraz, Celine ^{[1
]}

de la Tribonniere, Xavier ^{[2
,3
]}

Morsa, Maxime ^{[4
]}

Rattaz, Cecile ^{[1
]}

Baghdadli, Amaria ^{[1
,3
,5
]}

机构：

[1] CHU Montpellier, Ctr Ressource Autisme Languedoc, Roussillon & Ctr Excellence Autisme & Troubles Ne, Montpellier, France

[2] CHU Montpellier, Unite Transversale Educ Patient UTEP, Montpellier, France

[3] Univ Montpellier, Fac Med, Montpellier, France

[4] Univ Paris Sorbonne Paris Nord, Lab Educ & Prat Sante UR3412, Bobigny, France

[5] Univ Paris Saclay, UVSQ, INSERM, CESP, F-94807 Villejuif, France

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 07期

关键词：

Autism spectrum disorder; Patient education; Caregivers; Needs; Self-care; Self-management; QUALITY-OF-LIFE; EDUCATION-PROGRAM; PATIENT EDUCATION; CHILDREN; PARENTS; ADOLESCENTS; FAMILIES; SUPPORT; EXPERIENCES; CARE;

D O I：

10.1007/s10803-022-05499-x

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Objectives Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs. Methods This was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France. Results 1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support. Conclusions This study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.

引用

页码：2798 / 2805

页数：8

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