Patient, caregiver and other knowledge user engagement in consensus-building healthcare initiatives: a scoping review protocol

被引：1

作者：

Munce, Sarah E. P. ^{[1
,2
]}

Wong, Elliott ^{[3
,4
]}

Luong, Dorothy ^{[1
]}

Rao, Justin ^{[3
]}

Cunningham, Jessie ^{[5
]}

Bailey, Katherine ^{[3
,6
]}

John, Tomisin ^{[4
]}

Barber, Claire ^{[7
]}

Batthish, Michelle ^{[8
]}

Chambers, Kyle ^{[9
]}

Cleverley, Kristin ^{[10
,11
]}

Crabtree, Marilyn ^{[9
,12
]}

Diaz, Sanober ^{[9
,12
]}

Dimitropoulos, Gina ^{[9
,13
]}

Gorter, Jan Willem ^{[14
,15
]}

Grahovac, Danijela ^{[16
,17
]}

Grimes, Ruth ^{[18
]}

Guttman, Beverly ^{[12
]}

Hebert, Michele L. ^{[19
]}

Henze, Megan ^{[9
,20
]}

Higgins, Amanda ^{[9
,21
]}

Khodyakov, Dmitry ^{[22
]}

Li, Elaine ^{[9
]}

Lo, Lisha ^{[23
]}

Macgregor, Laura ^{[9
,24
]}

Mooney, Sarah ^{[9
,25
]}

Severino, Samadhi Mora ^{[9
,26
]}

Mukerji, Geetha ^{[27
]}

Penner, Melanie ^{[9
,28
]}

Pidduck, Jacklynn ^{[9
,21
]}

Shulman, Rayzel ^{[3
,29
,30
]}

Stromquist, Lisa ^{[9
,31
]}

Trbovich, Patricia ^{[6
,32
]}

Wan, Michelle ^{[9
]}

Williams, Laura ^{[9
,33
]}

Yates, Darryl ^{[4
,9
]}

Toulany, Alene ^{[3
,34
]}

机构：

[1] Univ Hlth Network, KITE Toronto Rehabil Inst, Toronto, ON, Canada

[2] Univ Toronto, Rehabil Sci Inst, Toronto, ON, Canada

[3] Univ Toronto, Temerty Fac Med, Toronto, ON, Canada

[4] Hosp Sick Children, Toronto, ON, Canada

[5] Hosp Sick Children, Res Inst, Toronto, ON, Canada

[6] Univ Toronto, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada

[7] Univ Calgary, Cumming Sch Med, Med, Calgary, AB, Canada

[8] McMaster Univ, Hamilton, ON, Canada

[9] Integrated Knowledge Translat Panel Member, Toronto, ON, Canada

[10] Ctr Addict & Mental Hlth Queen St Site, Toronto, ON, Canada

[11] Univ Toronto, Lawrence Bloomberg Fac Nursing, Toronto, ON, Canada

[12] Prov Council Maternal & Child Hlth, Toronto, ON, Canada

[13] Univ Calgary, Fac Social Work, Calgary, AB, Canada

[14] McMaster Univ, CanChild Ctr Childhood Disabil Res, Dept Pediat, Hamilton, ON, Canada

[15] Univ Med Ctr, Wilhelmina Childrens Hosp, Dept Rehabil Phys Therapy Sci & Sports, Utrecht, Netherlands

[16] Childrens Healthcare Canada, Natl Hlth Hub Transit, Hamilton, ON, Canada

[17] McMaster Univ, CanChild Ctr Childhood Disabil Res, Hamilton, ON, Canada

[18] Canadian Pediat Soc, Winnipeg, MB, Canada

[19] Univ Alberta, Fac Rehabil Med, Edmonton, AB, Canada

[20] Surrey Pl Ctr, Toronto, ON, Canada

[21] IWK Hlth Ctr, Halifax, NS, Canada

[22] RAND Corp, Santa Monica, CA USA

[23] Univ Toronto, Ctr Qual Improvement & Patient Safety, Toronto, ON, Canada

[24] Martin Luther Univ Coll, Waterloo, ON, Canada

[25] Stollery Childrens Hosp, Edmonton, AB, Canada

[26] York Univ, Sch Hlth Policy & Management, Toronto, ON, Canada

[27] Womens Coll Hosp, Dept Med, Toronto, ON, Canada

[28] Holland Bloorview Kids Rehabil Hosp, Toronto, ON, Canada

[29] Univ Toronto, Div Endocrinol, Toronto, ON, Canada

[30] Univ Toronto, Dept Paediat, Toronto, ON, Canada

[31] Natl Hlth Hub Transit, Childrens Healthcare Canada, Ottawa, ON, Canada

[32] North York Gen Hosp, Patient Safety & Qual Improvement, Toronto, ON, Canada

[33] Univ Hlth Network, Toronto, ON, Canada

[34] Hosp Sick Children, Div Adolescent Med, Toronto, ON, Canada

来源：

BMJ OPEN | 2024年 / 14卷 / 05期

关键词：

patients; patient participation; literature; NOMINAL GROUP; DELPHI METHOD; PARTICIPATION; CORE;

D O I：

10.1136/bmjopen-2023-080822

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Introduction Patient engagement and integrated knowledge translation (iKT) processes improve health outcomes and care experiences through meaningful partnerships in consensus-building initiatives and research. Consensus-building is essential for engaging a diverse group of experienced knowledge users in co-developing and supporting a solution where none readily exists or is less optimal. Patients and caregivers provide invaluable insights for building consensus in decision-making around healthcare, policy and research. However, despite emerging evidence, patient engagement remains sparse within consensus-building initiatives. Specifically, our research has identified a lack of opportunity for youth living with chronic health conditions and their caregivers to participate in developing consensus on indicators/benchmarks for transition into adult care. To bridge this gap and inform our consensus-building approach with youth/caregivers, this scoping review will synthesise the extent of the literature on patient and other knowledge user engagement in consensus-building healthcare initiatives.Methods and analysis Following the scoping review methodology from Joanna Briggs Institute, published literature will be searched in MEDLINE, EMBASE, CINAHL and PsycINFO databases from inception to July 2023. Grey literature will be hand-searched. Two independent reviewers will determine the eligibility of articles in a two-stage process, with disagreements resolved by a third reviewer. Included studies must be consensus-building studies within the healthcare context that involve patient engagement strategies. Data from eligible studies will be extracted and charted on a standardised form. Abstracted data will be analysed quantitatively and descriptively, according to specific consensus methodologies, and patient engagement models and/or strategies.Ethics and dissemination Ethics approval is not required for this scoping review protocol. The review process and findings will be shared with and informed by relevant knowledge users. Dissemination of findings will also include peer-reviewed publications and conference presentations. The results will offer new insights for supporting patient engagement in consensus-building healthcare initiatives.Protocol registration https://osf.io/beqjr

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页数：7

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