Health researchers’ experiences, perceptions and barriers related to sharing study results with participants

被引:0
|
作者
Christopher R. Long
Rachel S. Purvis
Elizabeth Flood-Grady
Kim S. Kimminau
Robert L. Rhyne
Mark R. Burge
M. Kathryn Stewart
Amy J. Jenkins
Laura P. James
Pearl A. McElfish
机构
[1] College of Medicine,Office of Community Health and Research
[2] University of Arkansas for Medical Sciences Northwest,STEM Translational Communication Center, College of Journalism and Communications and Recruitment Center, Clinical Translational Science Institute
[3] University of Arkansas for Medical Sciences Northwest,Department of Family Medicine
[4] University of Florida,Department of Family and Community Medicine, School of Medicine
[5] University of Kansas Medical Center,Clinical and Translational Science Center, Health Science Center
[6] University of New Mexico,Translational Research Institute
[7] University of New Mexico,Department of Pediatrics
[8] Fay W. Boozman College of Public Health,undefined
[9] University of Arkansas for Medical Sciences,undefined
[10] University of Arkansas for Medical Sciences,undefined
[11] University of Arkansas for Medical Sciences,undefined
关键词
Research dissemination; dissemination survey; results sharing; research results; health research dissemination; research communication;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [31] A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers
    Hendricks-Sturrup, Rachele M.
    Zhang, Fang
    Lu, Christine Y. Y.
    JOURNAL OF PERSONALIZED MEDICINE, 2022, 12 (11):
  • [32] Scientific misconduct: A cross-sectional study of the perceptions, attitudes and experiences of Spanish researchers
    Candal-Pedreira, Cristina
    Ghaddar, Ali
    Perez-Rios, Monica
    Varela-Lema, Leonor
    Alvarez-Dardet, Carlos
    Ruano-Ravina, Alberto
    ACCOUNTABILITY IN RESEARCH-ETHICS INTEGRITY AND POLICY, 2025, 32 (03): : 393 - 416
  • [33] The impact of sharing results of a randomized breast cancer clinical trial with study participants
    Ann H. Partridge
    A. C. Wolff
    P. K. Marcom
    P. A. Kaufman
    L. Zhang
    R. Gelman
    C. Moore
    D. Lake
    G. F. Fleming
    H. S. Rugo
    J. Atkins
    E. Sampson
    D. Collyar
    E. P. Winer
    Breast Cancer Research and Treatment, 2009, 115 : 123 - 129
  • [34] Returning study results to research participants: Data access, format, and sharing preferences
    Mangal, Sabrina
    de Rivera, Stephanie Nino
    Choi, Jacky
    Turchioe, Meghan Reading
    Benda, Natalie
    Sharko, Marianne
    Myers, Annie
    Goyal, Parag
    Dugdale, Lydia
    Creber, Ruth Masterson
    INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS, 2023, 170
  • [35] The impact of sharing results of a randomized breast cancer clinical trial with study participants
    Partridge, Ann H.
    Wolff, A. C.
    Marcom, P. K.
    Kaufman, P. A.
    Zhang, L.
    Gelman, R.
    Moore, C.
    Lake, D.
    Fleming, G. F.
    Rugo, H. S.
    Atkins, J.
    Sampson, E.
    Collyar, D.
    Winer, E. P.
    BREAST CANCER RESEARCH AND TREATMENT, 2009, 115 (01) : 123 - 129
  • [36] International youth mental health case study of peer researchers’ experiences
    Inga Spuerck
    Milos Stankovic
    Syeda Zeenat Fatima
    Elmas Yilmas
    Nicholas Morgan
    Jenna Jacob
    Julian Edbrooke-Childs
    Panos Vostanis
    Research Involvement and Engagement, 9 (1)
  • [37] Health providers perceptions of parturient experiences related to neuraxial labour analgesia
    Angel, PJ
    Streiner, DL
    Yee, JA
    Szalai, J
    Lie, L
    Lam, D
    Macarthur, A
    ANESTHESIOLOGY, 2004, 100 (05) : B23 - B23
  • [38] Forensic Mental Health Tribunals: A Qualitative Study of Participants' Experiences and Views
    Livingston, James D.
    Crocker, Anne G.
    Nicholls, Tonia L.
    Seto, Michael C.
    PSYCHOLOGY PUBLIC POLICY AND LAW, 2016, 22 (02) : 173 - 184
  • [39] Researchers' views on, and experiences with, the requirement to obtain informed consent in research involving human participants: a qualitative study
    Xu, Antonia
    Baysari, Melissa Therese
    Stocker, Sophie Lena
    Leow, Liang Joo
    Day, Richard Osborne
    Carland, Jane Ellen
    BMC MEDICAL ETHICS, 2020, 21 (01)
  • [40] Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS)
    Ashley Crook
    Loren Plunkett
    Laura E Forrest
    Nina Hallowell
    Samantha Wake
    Kathryn Alsop
    Margaret Gleeson
    David Bowtell
    Gillian Mitchell
    Mary-Anne Young
    European Journal of Human Genetics, 2015, 23 : 152 - 158