Exploring the Quality of Communication Between Patients with Psoriatic Arthritis and Physicians: Results of a Global Online Survey

被引:0
|
作者
Laura C. Coates
Valderilio F. Azevedo
Joseph C. Cappelleri
Jade Moser
Lihi Eder
Pascal Richette
Meng-Yu Weng
Ruben Queiro Silva
Amit Garg
Amar Majjhoo
Christopher E. M. Griffiths
Pamela Young
Samantha Howland
机构
[1] University of Oxford,Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences
[2] Universidade Federal do Paraná,Rheumatology Department
[3] Pfizer Inc,Department of Internal Medicine, Division of Allergy, Immunology, and Rheumatology
[4] The Harris Poll,Rheumatology Division
[5] Women’s College Research Institute,Dermatology Centre, NIHR Manchester Biomedical Research Centre
[6] University of Toronto,undefined
[7] Lariboisière Hospital,undefined
[8] Lariboisière,undefined
[9] University of Paris,undefined
[10] National Cheng Kung University Hospital,undefined
[11] College of Medicine,undefined
[12] National Cheng Kung University,undefined
[13] HUCA,undefined
[14] Donald and Barbara Zucker School of Medicine at Hofstra/Northwell,undefined
[15] Shores Rheumatology,undefined
[16] University of Manchester,undefined
[17] Pfizer Inc,undefined
[18] Pfizer Ltd,undefined
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关键词
Communication; Health-related quality of life; Patients; Physicians; Psoriatic arthritis; Surveys and questionnaires;
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摘要
Psoriatic arthritis (PsA) is a disease that can cause swollen and painful joints, as well as skin psoriasis. To effectively treat PsA, it is important that doctors and patients communicate well. We used a survey to ask patients with PsA and doctors from around the world about their communications about PsA. We also asked how PsA affects patients’ quality of life. In total, 1286 patients and 1553 doctors took the survey. Most patients said that PsA affected their social and work lives. Similarly, PsA had a negative impact on physical activity and on emotional and/or mental wellbeing in most patients who answered the survey. Doctors answered similarly, but they were generally less likely to recognize how severely PsA can impact patients, compared with patients themselves. Most patients and doctors were happy with their patient–doctor communication, and most patients felt comfortable talking about their worries and/or fears with their doctor. However, some patients (about four out of 10) felt that communication with their doctors was not good; these patients were less likely/comfortable to talk about their PsA symptoms and the impacts of PsA with their doctor. PsA was also more likely to negatively impact these patients’ quality of life. This survey shows that it is important to find ways to improve communication between patients with PsA and their doctors.
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页码:1741 / 1758
页数:17
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