Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report

被引:0
|
作者
Konrad Bork
John T. Anderson
Teresa Caballero
Timothy Craig
Douglas T. Johnston
H. Henry Li
Hilary J. Longhurst
Cristine Radojicic
Marc A. Riedl
机构
[1] University Medical Center,Department of Dermatology
[2] Johannes Gutenberg University,Allergy Department
[3] Clinical Research Center of Alabama,Department of Medicine and Pediatrics
[4] Hospital La Paz Institute for Health Research (IdiPaz),Division of Allergy and Clinical Immunology, Department of Medicine
[5] Biomedical Research Network on Rare Diseases (CIBERER,undefined
[6] U754),undefined
[7] Penn State University,undefined
[8] Asthma and Allergy Specialists,undefined
[9] Institute for Asthma and Allergy,undefined
[10] Addenbrookes Hospital,undefined
[11] Cambridge Universities NHS Foundation Trust,undefined
[12] Cambridge and University College Hospital London,undefined
[13] Duke University,undefined
[14] University of California San Diego,undefined
来源
Allergy, Asthma & Clinical Immunology | / 17卷
关键词
Consensus document; Disease burden; Hereditary angioedema; Management; Quality of life;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] Humanistic burden of hereditary angioedema: health-related quality of life, depression, productivity, and social consequences
    Castaldo, A.
    Lumry, W.
    Caballero, T.
    Vernon, M.
    Blaustein, M.
    Wilson, D.
    ALLERGY, 2009, 64 : 232 - 232
  • [42] Validation of the international quality of life questionnaire for hereditary angioedema
    Prior, N.
    Remor, E.
    Perez-Fernandez, E.
    Gomez-Traseira, C.
    Caminoa, M.
    Gaya, F.
    Aabom, A.
    Aberer, W.
    Betschel, S.
    Bygum, A.
    Csuka, D.
    Farkas, H.
    Groffik, A.
    Gomide, M.
    Grumach, A.
    Leibovich, I
    Malbran, A.
    Mihaly, E.
    Moldovan, D.
    Obtulowicz, K.
    Porebski, G.
    Rayonne, C.
    Reshef, A.
    Staubach, P.
    Wiednig, M.
    Caballero, T.
    ALLERGY, 2013, 68 : 111 - 111
  • [43] IMPROVING THE QUALITY OF CARE FOR HEREDITARY ANGIOEDEMA PATIENTS
    Sabharwal, G.
    Craig, T. J.
    ANNALS OF ALLERGY ASTHMA & IMMUNOLOGY, 2012, 109 (05) : A35 - A35
  • [44] Assessment of Economic Burden and Quality of Life in Stable Coronary Artery Disease Patients
    Kumar, Lalit
    Prakash, Anupam
    Gupta, S. K.
    INDIAN JOURNAL OF MEDICAL SPECIALITIES, 2019, 10 (01) : 26 - 29
  • [45] Consensus on diagnosis and management of Hereditary Angioedema in the Middle East: A Delphi initiative
    Maurer, Marcus
    Abuzakouk, Mohamed
    Al-Ahmad, Mona
    Al-Herz, Waleed
    Alrayes, Hassan
    Al-Tamemi, Salem
    Arnaout, Rand
    Binghadeer, Hend
    Gutta, Ravi
    Irani, Carla
    Mobayed, Hassan
    Nasr, Iman
    Shendi, Hiba
    Zaitoun, Fares
    WORLD ALLERGY ORGANIZATION JOURNAL, 2023, 16 (01):
  • [46] Quality of life assessment in vascular disease: Towards a consensus
    Beattie, DK
    Golledge, J
    Greenhalgh, RM
    Davies, AH
    EUROPEAN JOURNAL OF VASCULAR AND ENDOVASCULAR SURGERY, 1997, 13 (01) : 9 - 13
  • [47] 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema
    Tom Bowen
    Marco Cicardi
    Henriette Farkas
    Konrad Bork
    Hilary J Longhurst
    Bruce Zuraw
    Emel Aygoeren-Pürsün
    Timothy Craig
    Karen Binkley
    Jacques Hebert
    Bruce Ritchie
    Laurence Bouillet
    Stephen Betschel
    Della Cogar
    John Dean
    Ramachand Devaraj
    Azza Hamed
    Palinder Kamra
    Paul K Keith
    Gina Lacuesta
    Eric Leith
    Harriet Lyons
    Sean Mace
    Barbara Mako
    Doris Neurath
    Man-Chiu Poon
    Georges-Etienne Rivard
    Robert Schellenberg
    Dereth Rowan
    Anne Rowe
    Donald Stark
    Smeeksha Sur
    Ellie Tsai
    Richard Warrington
    Susan Waserman
    Rohan Ameratunga
    Jonathan Bernstein
    Janne Björkander
    Kristylea Brosz
    John Brosz
    Anette Bygum
    Teresa Caballero
    Mike Frank
    George Fust
    George Harmat
    Amin Kanani
    Wolfhart Kreuz
    Marcel Levi
    Henry Li
    Inmaculada Martinez-Saguer
    Allergy, Asthma & Clinical Immunology, 6 (1)
  • [48] MANAGEMENT OF ADULT PATIENTS WITH ICATIBANT IN HEREDITARY ANGIOEDEMA
    Drake, David
    Sultan, Laith
    EMERGENCY MEDICINE JOURNAL, 2011, 28 (08) : 720 - 721
  • [49] HEREDITARY ANGIOEDEMA - CASE-REPORT AND REVIEW OF MANAGEMENT
    RODGERS, GK
    GALOS, RS
    JOHNSON, JT
    OTOLARYNGOLOGY-HEAD AND NECK SURGERY, 1991, 104 (03) : 394 - 398
  • [50] Histaminergic angioedema: Burden of illness and impact on quality of life
    Rodriguez-Garijo, Nuria
    Sabate Bresco, Marina
    Azofra, Julian
    Baeza, Maria L.
    Gaig, Pere
    Guilarte, Mar
    Herrera-Lasso, Valeria
    Labrador-Horrillo, Moises
    Veleiro, Beatriz
    Sanchez, Gil
    Ferrer, Marta
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2020, 83 (06) : AB61 - AB61