Could digital patient communities be the launch pad for patient-centric trial design?

被引：0
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作者：
Paul Wicks
机构：
[1] PatientsLikeMe,
来源：
Trials | / 15卷
关键词：
Patient centered trial design; Patient powered research networks; Protocol design; Clinical trials;
D O I：
暂无
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学科分类号：
摘要：
The system of medical discovery does not revolve around patients as unique individuals with preferences, needs, and desires. Rather it revolves around scientific scrutiny, the needs of the sponsor, and the desires for regulatory approval. The patient is only a subject. Is it any wonder, then, that some patients have rejected the current medical paradigm and sought to find their own path?
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