Living with autoinflammatory diseases: identifying unmet needs of children, adolescents and adults

被引：0
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作者：
Gabriele Erbis
Kirstin Schmidt
Sandra Hansmann
Tetiana Sergiichuk
Christine Michler
Jasmin B. Kuemmerle-Deschner
Susanne M. Benseler
机构：
[1] University Children’s Hospital Tuebingen,Rheumatology, Department of Pediatrics and autoinflammation reference center Tuebingen
[2] University of Tuebingen,Institute of Education
[3] Division of Oncological Surgery,Rheumatology, Department of Paediatrics, Alberta Children’s Hospital
[4] Neurosurgery,undefined
[5] Urology Gynaecologic Surgery District Clinics Reutlingen,undefined
[6] Cumming School of Medicine,undefined
[7] University of Calgary,undefined
来源：
Pediatric Rheumatology | / 16卷
关键词：
Autoinflammatory disease; Rare disease; Unmet needs; Health-related quality of life; Psychosocial impact; Intervention; Health communication; School performance; School bullying; Participation;
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