Experimental subjects and partial truth telling during technological change in radiotherapy

被引:0
|
作者
Wood, Lisa Anne [1 ]
机构
[1] Univ Lancaster, Furness Bldg, Lancaster LA1 4YG, England
基金
英国经济与社会研究理事会;
关键词
Consent; consent for research; experimental practices; new technologies; truth telling; ETHICS; CANCER; CARE; ALTRUISM;
D O I
10.1177/0969733015614881
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Background: Cone Beam Computed Tomography (CBCT), the focus of a number of radiotherapy fundraising campaigns in the mid-2000s, was introduced accompanied by a fanfare of newness and discourses of hope', inspiring clinical confidence' and accuracy'. The CBCT system, used in the delivery of Radiotherapy treatment, was incorporated into strategic planning priorities across the United Kingdom based on a rationale of self-evidence. During this time, the way in which the new system was discussed with patients was variable. Research objectives: The purpose of this study was to uncover how experimental practices were embedded and enacted during the use of a new technological system, specifically relating to how patients were enrolled during introductory phases of technology adoption. Research design and context: Drawing on ethnographic work and interviews with staff members in one hospital, the study examines staff discussions prior to the introduction of the Cone-Beam CT imaging system in radiotherapy. It considers how staff views were at odds with practices that occurred during the experimental' stages of use and how these were shared with patients. Ethical considerations: Approval was obtained from the Local National Health Service Research Ethics Committee and National Health Service Main Research Ethics Committee (REC 07/Q1308/16) for the interview and ethnographic stages, respectively. All names have been changed and participants signed a consent form. Findings: Staff reported a lack of evidence, absence of proof and perturbing doubts with the X-ray volumetric imaging. Both patients' and practitioners' partial understanding about the risks and benefits of the system created incommensurable ideas regarding its use and what the patients' role was during these introductory stages. Conclusion: Maintaining partial truth telling renders patients' experiences of new treatment at odds with experimental' practice. This has wide-reaching implications for practice.
引用
收藏
页码:441 / 451
页数:11
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