Heart failure (HF) is a syndrome associated with high mortality and morbidity. HF patients tend to be at a high risk of poor clinical and psychosocial outcomes. This study aimed to capture patients' and carers perspectives of HF, the impact on their health reported QoL, and the factors associated with their poor health outcomes. To explore HF patients' and carers' views on their QoL since diagnosis. This study used a cross-sectional, qualitative design with semi-structured interviews conducted with participating patients and carers. Thirteen adults (> 18 years) with HF and 21 carers were interviewed over the telephone, following a semi-structured interview schedule. Interviews were transcribed verbatim and analysed using inductive thematic analysis. Three main themes were identified, with an overarching theme . Themes included impact on patients' lifestyle including diet, smoking and inability to part-take in social activities, adjusting to HF diagnosis and co-morbidity management, and psychological/mental health issues such as anxiety and depression. Patients with HF are at high-risk of various issues which can negatively impact their QoL. Additionally, Carers play a vital role in the management of HF patients. Effective patient centred care and better communication between patients, carers and healthcare professionals is vital in HF management.
机构:
Hosp Alvorada, Sao Paulo, BrazilHosp Alvorada, Sao Paulo, Brazil
Soares, Djanira Alzira
de Souza Toledo, Jucimari Aparecida
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Hosp Israelita Albert Einstein, Fac Enfermagem, Sao Paulo, BrazilHosp Alvorada, Sao Paulo, Brazil
de Souza Toledo, Jucimari Aparecida
dos Santos, Luciana Farias
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Premier Residence Hosp, Sao Paulo, BrazilHosp Alvorada, Sao Paulo, Brazil
dos Santos, Luciana Farias
Beserra Lima, Rosilda Maria
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Hosp Geral Pirajussara, Sao Paulo, BrazilHosp Alvorada, Sao Paulo, Brazil
Beserra Lima, Rosilda Maria
Galdeano, Luzia Elaine
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机构:
Hosp Israelita Albert Einstein, Fac Enfermagem, Sao Paulo, Brazil
Univ Sao Paulo, EE, Programa Interunidades Doutoramento Enfermagem, BR-09500900 Sao Paulo, Brazil
Univ Sao Paulo, EERP, BR-09500900 Sao Paulo, BrazilHosp Alvorada, Sao Paulo, Brazil
机构:
Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Victoria-Castro, Angela M.
Martin, Melissa L.
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Martin, Melissa L.
Yamamoto, Yu
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Yamamoto, Yu
Melchinger, Hannah
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Melchinger, Hannah
Weinstein, Jason
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Weinstein, Jason
Nguyen, Andrew
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Nguyen, Andrew
Lee, Kyoung A.
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Lee, Kyoung A.
Gerber, Brett
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Gerber, Brett
Calderon, Frida
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Calderon, Frida
Subair, Labeebah
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Subair, Labeebah
Lee, Veronica
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Yale Univ, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Lee, Veronica
Williams, Alyssa
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Williams, Alyssa
Shaw, Melissa
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Shaw, Melissa
Arora, Tanima
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Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Arora, Tanima
Garcez, Adriano
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机构:
ZS, Evidence Generat & Outcomes Res, Boston, MA USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Garcez, Adriano
Desai, Nihar R.
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机构:
Yale Sch Med, Sect Cardiovasc Med, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Desai, Nihar R.
Ahmad, Tariq
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机构:
Yale Sch Med, Sect Cardiovasc Med, New Haven, CT USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Ahmad, Tariq
Wilson, F. Perry
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机构:
Yale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA
Yale Sch Med, Sect Nephrol, New Haven, CT USA
Temple Med Ctr, 60 Temple St, 6th Floor, Suite 6C, New Haven, CT 06511 USAYale Sch Med, Clin & Translat Res Accelerator, New Haven, CT USA