Patient engagement in cancer research from the patient's perspective

被引:12
|
作者
A Spears, Patricia [1 ,2 ]
机构
[1] Univ N Carolina, 170 Manning Dr, Chapel Hill, NC 27599 USA
[2] Patient Advocates Res Council, Patient Author UNC Lineberger Comprehens Canc Ctr, Chapel Hill, NC 27599 USA
关键词
cancer research; patient advocate; patient engagement; patient voice; research advocate; ADVOCACY;
D O I
10.2217/fon-2020-1198
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Patient engagement in cancer research involves the inclusion of patient voices into research to ensure knowledge generated will improve the lives of all cancer patients. Patients involved in research have an interest in science, an experience with cancer and want to work directly with researchers to ensure patient concerns are heard. There are many opportunities for patient engagement in laboratory and clinical research, throughout the lifecycle of the project from conception to completion. Researchers and patient advocates can take practical steps to ensure their engagement is effective and meaningful. Adding the patient voice in research honors those who have died, so future cancer patients have access to new therapies to live longer and better lives. Tweetable abstract Adding the patient voice in research honors those who have died so that future cancer patients have access to new therapies to live longer and better lives.
引用
收藏
页码:3717 / 3728
页数:12
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