Transition to Adulthood for Autistic Adolescents: Topics Discussed by Healthcare Providers With Autistic Patients and Families

被引:4
|
作者
Myers, Rachel K. [1 ,2 ,8 ]
Labows, Christina [1 ]
Yerys, Benjamin E. [3 ,4 ]
McDonald, Catherine C. [1 ,5 ,6 ]
Sartin, Emma B. [1 ]
Mollen, Cynthia J. [2 ,7 ]
Curry, Allison E. [1 ,2 ]
机构
[1] Childrens Hosp Philadelphia, Ctr Injury Res & Prevent, Philadelphia, PA USA
[2] Univ Penn, Perelman Sch Med, Dept Pediat, Div Emergency Med, Philadelphia, PA USA
[3] Childrens Hosp Philadelphia, Ctr Autism Res, Philadelphia, PA USA
[4] Univ Penn, Dept Psychiat, Perelman Sch Med, Philadelphia, PA USA
[5] Univ Penn, Sch Nursing, Dept Family & Community Hlth, Philadelphia, PA USA
[6] Univ Penn, Perelman Sch Med, Dept Pediat, Div Pediat, Philadelphia, PA USA
[7] Childrens Hosp Philadelphia, PolicyLab, Philadelphia, PA USA
[8] Childrens Hosp Philadelphia, Ctr Injury Res & Prevent, 2716 South St,13th Floor, Philadelphia, PA 19146 USA
基金
美国国家卫生研究院;
关键词
Autism spectrum disorder; Transition to adult care; Delivery of healthcare; Adolescent health services; Quality of life; Activities of daily living; YOUNG-ADULTS; YOUTH; PERSPECTIVES; CHILDREN;
D O I
10.1016/j.jadohealth.2021.12.011
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Purpose: We surveyed healthcare providers to determine the extent to which they discuss transition-to-adulthood topics with autistic patients without intellectual disabilities.Methods: Seventy-four healthcare providers in the Philadelphia area reported on the patient age at which they begin transition conversations, topics covered, and provider comfort. We calculated the proportion of providers who endorsed each transition topic, overall and by clinical setting.Results: Providers initiated transition-related conversations at a median age of 16 years (IQR: 14, 18), with over half reporting they were "somewhat" or "a little" comfortable with discussions. Nearly all providers discussed at least one healthcare, well-being, and mental health topic, while basic need-related discussions were limited.Discussion: Results suggest providers may delay and feel poorly prepared to provide anticipatory guidance to autistic patients for transition to adulthood. Future efforts to enhance the available resources and preparation available to providers are essential to meet autistic patients' needs.(c) 2021 Society for Adolescent Health and Medicine. All rights reserved.
引用
收藏
页码:829 / 832
页数:4
相关论文
共 50 条
  • [21] HEALTHCARE PROVIDERS AND TEEN DRIVING SAFETY: TOPICS DISCUSSED AND COMMUNICATION PRODUCTS USED IN PRACTICE
    Huitric, M.
    Greenspan, A.
    Dellinger, A.
    West, B.
    INJURY PREVENTION, 2015, 21
  • [22] The psychological impact of the secondary school transition on families of autistic children
    Yates, L.
    Keville, S.
    Ludlow, A.
    INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES, 2024, 70 (07) : 1207 - 1217
  • [23] The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers
    Nicolaidis, Christina
    Raymaker, Dora
    McDonald, Katherine
    Kapp, Steven
    Weiner, Michael
    Ashkenazy, Elesia
    Gerrity, Martha
    Kripke, Clarissa
    Platt, Laura
    Baggs, Amelia
    JOURNAL OF GENERAL INTERNAL MEDICINE, 2016, 31 (10) : 1180 - 1189
  • [24] The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers
    Christina Nicolaidis
    Dora Raymaker
    Katherine McDonald
    Steven Kapp
    Michael Weiner
    Elesia Ashkenazy
    Martha Gerrity
    Clarissa Kripke
    Laura Platt
    Amelia Baggs
    Journal of General Internal Medicine, 2016, 31 : 1180 - 1189
  • [25] A Randomized Clinical Trial Targeting Daily Living Skills in Autistic Adolescents Without an Intellectual Disability Before the Transition to Adulthood
    Duncan, Amie
    Meinzen-Derr, Jareen
    Ruble, Lisa
    Fassler, Carrie
    Stark, Lori J.
    JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2023, 44 (09): : E590 - E596
  • [26] A Pediatrician's Practical Guide for Navigating Transition to Adulthood with Autistic Youth and Their Caregivers
    Sohl, Kristin
    Oberweiser, Crystalena
    Ranum, Elly
    Oberweiser, Charles
    Cornell, Wendy
    PEDIATRIC CLINICS OF NORTH AMERICA, 2024, 71 (02) : 315 - 326
  • [27] Transition to Adulthood: Executive Functions and Independent Living Skills in Autistic Young Adults
    Sullivan, Anne C.
    Vas, Asha K.
    Johnson, Wendi L.
    OCCUPATIONAL THERAPY IN HEALTH CARE, 2024,
  • [28] PREDICTORS OF POSITIVE INTERACTIONS WITH HEALTHCARE PROFESSIONALS IN ETHNICALLY DIVERSE FAMILIES OF AUTISTIC CHILDREN
    Vashi, N.
    Crookshank, J.
    Bergeret, A.
    Ibrahim, A.
    Ibrahim, M.
    Staff, D.
    Chu, C.
    Campanella-Borraccia, C.
    Vitoroulis, I.
    Zubairi, M.
    Weiss, J.
    Lee, V.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2024, 68 (07) : 868 - 868
  • [29] Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare providers
    Chen, Chi-Wen
    Su, Wen-Jen
    Chiang, Yueh-Tao
    Shu, Ying-Mei
    Moons, Philip
    EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2017, 16 (02) : 125 - 135
  • [30] Working Beyond Capacity: a Qualitative Review of Research on Healthcare Providers' Experiences with Autistic Individuals
    Morris, Rae
    Greenblatt, Andrea
    Saini, Michael
    REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2023, 10 (01) : 158 - 168