Adolescent and young adult with cancer;
Unmet needs;
Social media;
Survivorship;
Mixed methods study;
QUALITY-OF-LIFE;
SUPPORTIVE CARE;
BODY-IMAGE;
SURVIVORS;
SUICIDE;
GENDER;
IMPACT;
SPIRITUALITY;
PREVALENCE;
INTERVIEWS;
D O I:
10.1016/j.pedn.2022.01.019
中图分类号:
R47 [护理学];
学科分类号:
1011 ;
摘要:
Purpose: The purpose of this study is to identify and compare the unmet needs of adolescents and young adults (AYAs) with cancer by age and gender.Design and methods: This is a mixed-methods study to analyze textual data from blog posts on AYAs' unmet needs. Themes were identified using a qualitative descriptive method with content analysis, and a quantitative method was used to compare themes by age and gender.Results: The findings from blog posts of 100 AYAs showed that AYAs with cancer expressed somewhat different needs by age and gender. Young adults (26-39 years) with cancer tended to describe significantly more feelings of fear (p = .043) and parenting needs (p < .001) and significantly fewer educational needs (p < .001) than did emerging adults (18-25 years) with cancer. Female AYAs with cancer described significantly more feelings of guilt (p = .020), sexual needs (p = .003), fertility issues (p = .023), and social needs (p = .013) than did male AYAs with cancer. There were no statistically significant differences in the remaining themes between age and gender groups, although how they described unmet needs differed qualitatively.Conclusions: AYAs with cancer have various unmet needs and their unmet needs were different by age and gender. Practice implications: Nurses should proactively provide integrated systematic screening by offering a safe, non-judgmental environment to encourage AYAs to express their needs across their cancer journey. Nurses also should respond with developmentally appropriate support, resources, and referrals based on these expressed needs.(c) 2022 Elsevier Inc. All rights reserved.
机构:
NCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Smith, Ashley Wilder
Parsons, Helen M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Texas Hlth Sci Ctr San Antonio, Dept Epidemiol & Biostat, Sch Med, San Antonio, TX 78229 USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Parsons, Helen M.
Kent, Erin E.
论文数: 0引用数: 0
h-index: 0
机构:
NCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Kent, Erin E.
论文数: 引用数:
h-index:
机构:
Bellizzi, Keith
Zebrack, Brad J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Michigan, Sch Social Work, Ann Arbor, MI 48109 USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Zebrack, Brad J.
Keel, Gretchen
论文数: 0引用数: 0
h-index: 0
机构:
Informat Management Serv Inc, Rockville, MD USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Keel, Gretchen
Lynch, Charles F.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Iowa, Dept Epidemiol, Iowa City, IA USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Lynch, Charles F.
Rubenstein, Mara B.
论文数: 0引用数: 0
h-index: 0
机构:
Childrens Hosp Michigan, Detroit, MI 48201 USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
Rubenstein, Mara B.
Keegan, Theresa H. M.
论文数: 0引用数: 0
h-index: 0
机构:
Canc Prevent Inst Calif, Fremont, CA USANCI, Outcomes Res Branch, Appl Res Program, Div Canc Control & Populat Sci, Bethesda, MD 20892 USA
机构:
St Jude Childrens Res Hosp, Memphis, TN USA
St Jude childrens Res Hosp, 262 Danny Thomas Pl,Ms 121, Memphis, TN 38105 USASt Jude Childrens Res Hosp, Memphis, TN USA
Daniels, Sarah
Willard, Victoria W.
论文数: 0引用数: 0
h-index: 0
机构:
St Jude Childrens Res Hosp, Memphis, TN USASt Jude Childrens Res Hosp, Memphis, TN USA
机构:
ALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Univ Rovira & Virgili, Res Ctr Behav Assessment CRAMC, Dept Psychol, Catalonia, Spain
Univ Rovira & Virgili, Inst Invest Sanitaria Pere Virgili, Catalonia, SpainALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Galan, S.
De La Vega, R.
论文数: 0引用数: 0
h-index: 0
机构:
ALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Univ Rovira & Virgili, Res Ctr Behav Assessment CRAMC, Dept Psychol, Catalonia, Spain
Univ Rovira & Virgili, Inst Invest Sanitaria Pere Virgili, Catalonia, SpainALGOS, Unit Study & Treatment Pain, Catalonia, Spain
De La Vega, R.
Tome Pires, C.
论文数: 0引用数: 0
h-index: 0
机构:
ALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Univ Rovira & Virgili, Res Ctr Behav Assessment CRAMC, Dept Psychol, Catalonia, Spain
Univ Rovira & Virgili, Inst Invest Sanitaria Pere Virgili, Catalonia, SpainALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Tome Pires, C.
Racine, M.
论文数: 0引用数: 0
h-index: 0
机构:
Lawson Hlth Res Inst, London, ON, Canada
St Josephs Hlth Care, Beryl & Richard Ivey Rheumatol Day Programs, London, ON, Canada
Univ Western Ontario, Schulich Sch Med & Dent, Clin & Neurol Sci Dept, London, ON, CanadaALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Racine, M.
Sole, E.
论文数: 0引用数: 0
h-index: 0
机构:
ALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Univ Rovira & Virgili, Res Ctr Behav Assessment CRAMC, Dept Psychol, Catalonia, Spain
Univ Rovira & Virgili, Inst Invest Sanitaria Pere Virgili, Catalonia, SpainALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Sole, E.
Jensen, M. P.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Washington, Dept Rehabil Med, Seattle, WA 98195 USAALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Jensen, M. P.
Miro, J.
论文数: 0引用数: 0
h-index: 0
机构:
ALGOS, Unit Study & Treatment Pain, Catalonia, Spain
Univ Rovira & Virgili, Res Ctr Behav Assessment CRAMC, Dept Psychol, Catalonia, Spain
Univ Rovira & Virgili, Inst Invest Sanitaria Pere Virgili, Catalonia, SpainALGOS, Unit Study & Treatment Pain, Catalonia, Spain
机构:
Beijing Normal Univ, Sch Journalism & Commun, Beijing, Peoples R China
Tsinghua Univ, Vanke Sch Publ Hlth, Beijing, Peoples R ChinaBeijing Normal Univ, Sch Journalism & Commun, Beijing, Peoples R China
Sun, Haocan
Zhang, Rudong
论文数: 0引用数: 0
h-index: 0
机构:
Tsinghua Univ, Vanke Sch Publ Hlth, Beijing, Peoples R ChinaBeijing Normal Univ, Sch Journalism & Commun, Beijing, Peoples R China
Zhang, Rudong
Li, Xuan
论文数: 0引用数: 0
h-index: 0
机构:
Tsinghua Univ, Vanke Sch Publ Hlth, Beijing, Peoples R ChinaBeijing Normal Univ, Sch Journalism & Commun, Beijing, Peoples R China
Li, Xuan
Tang, Kun
论文数: 0引用数: 0
h-index: 0
机构:
Tsinghua Univ, Vanke Sch Publ Hlth, Beijing, Peoples R ChinaBeijing Normal Univ, Sch Journalism & Commun, Beijing, Peoples R China