Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder

被引:50
|
作者
Chamak, Brigitte [1 ]
Bonniau, Beatrice [1 ]
机构
[1] Paris Descartes Univ, EHESS, CNRS UMR 8211, CERMES3,INSERM U988, 45 Rue St Peres, F-75270 Paris 06, France
关键词
Autism; Asperger syndrome; Outcome; Trajectory; Adults; ASPERGER-SYNDROME; YOUNG-CHILDREN; INDIVIDUALS; POPULATION; ADOLESCENTS; PARENTS; ASSOCIATIONS; PREDICTORS; MOTHERS; FATHERS;
D O I
10.1007/s10803-015-2656-6
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
The aim of this retrospective study was to retrace the trajectories and long-term outcomes of individuals with autism in France, and to explore the family experiences. Data obtained from parents enables us to follow the trajectories of 76 adults. Two-thirds of adults with severe autism had a very poor outcome. Those with moderate autism had a better outcome. In adulthood, the majority were in residential accommodation. None were living independently. The trajectories of people with Asperger syndrome or high-functioning autism were more positive since all of them attended school for a long time and some went to university. All of them had a good outcome but they remained dependent on aging parents who had few available supports.
引用
收藏
页码:1084 / 1095
页数:12
相关论文
共 50 条
  • [31] Psychopathology Trajectories of Children With Autism Spectrum Disorder: The Role of Family Poverty and Parenting
    Midouhas, Emily
    Yogaratnam, Amy
    Flouri, Eirini
    Charman, Tony
    JOURNAL OF THE AMERICAN ACADEMY OF CHILD AND ADOLESCENT PSYCHIATRY, 2013, 52 (10): : 1057 - 1065
  • [32] Daily Experiences Among Mothers of Adolescents and Adults with Autism Spectrum Disorder
    Smith, Leann E.
    Hong, Jinkuk
    Seltzer, Marsha Mailick
    Greenberg, Jan S.
    Almeida, David M.
    Bishop, Somer L.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2010, 40 (02) : 167 - 178
  • [33] Independent living in adults with autism spectrum disorder: Stakeholders' perspectives and experiences
    Ghanouni, Parisa
    Quirke, Stephanie
    Blok, Jennifer
    Casey, Amanda
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2021, 119
  • [34] The Effect of Long-Term Use of Risperidone on Body Weight of Children With an Autism Spectrum Disorder
    Demb, Howard
    Valicenti-McDermott, Maria
    Navarro, Abegail
    Ayoob, Keith Thomas
    JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY, 2011, 31 (05) : 669 - 670
  • [35] Long-term treatment outcomes in children with auditory neuropathy spectrum disorder (ANSD)
    Ehrmann-Mueller, Desiree
    Back, Daniela
    Kuehn, Heike
    Hagen, Rudolf
    Shehata-Dieler, Wafaa
    INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY, 2020, 132
  • [36] Cochlear Implantation in Children with Auditory Neuropathy Spectrum Disorder: Long-Term Outcomes
    Breneman, Alyce I.
    Gifford, Rene H.
    DeJong, Melissa D.
    JOURNAL OF THE AMERICAN ACADEMY OF AUDIOLOGY, 2012, 23 (01) : 5 - 17
  • [37] Trajectories of Dysregulation in Children with Autism Spectrum Disorder
    Greenlee, Jessica L.
    Stelter, Claire R.
    Piro-Gambetti, Brianna
    Hartley, Sigan L.
    JOURNAL OF CLINICAL CHILD AND ADOLESCENT PSYCHOLOGY, 2021, 50 (06): : 858 - 873
  • [38] Long-term experiences on cardiac retransplantation in adults
    Tjang, Yanto Sandy
    Tenderich, Gero
    Hornik, Lech
    Wlost, Stefan
    Bairaktaris, Andreas
    Koerfer, Reiner
    EUROPEAN JOURNAL OF CARDIO-THORACIC SURGERY, 2007, 32 (06) : 923 - 925
  • [39] Gaming Disorder in Adults with Autism Spectrum Disorder
    Murray, Alayna
    Mannion, Arlene
    Chen, June L.
    Leader, Geraldine
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2022, 52 (06) : 2762 - 2769
  • [40] Parent Expectations Mediate Outcomes for Young Adults with Autism Spectrum Disorder
    Kirby, Anne V.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2016, 46 (05) : 1643 - 1655