Caregiving burden and positive aspects of caregiving among family caregivers of people living with schizophrenia: Two sides of the same coin

被引:4
|
作者
Liu, Yu-e [1 ]
Cao, Gui [2 ]
Li, Tong-xin [3 ]
Xi, Shi-jun [3 ,4 ]
Yu, Yu [5 ]
机构
[1] Hainan Med Univ, Hainan Gen Hosp, Dept Gen Coordinat, Hainan Affiliated Hosp, 19 Xiuhua Rd, Haikou 570311, Hainan, Peoples R China
[2] China Acad Labour & Social Insurance, Dept Hlth Insurance & Long term Care Insurance, 17 Huixinxi St, Beijing 100029, Peoples R China
[3] Cent South Univ, Xiangya Sch Publ Hlth, Dept Social Med & Hlth Management, Upper Mayuanlin Rd 238, Changsha 410008, Hunan, Peoples R China
[4] Foshan Ctr Dis Control & Prevent, Yingyin Rd 3, Foshan 528000, Peoples R China
[5] Yale Sch Med, Div Prevent & Community Res, 389 Whitney Ave, New Haven, CT 06511 USA
基金
中国国家自然科学基金;
关键词
Schizophrenia; Caregiver burden; Positive aspects of caregiving; Social support; Coping; SATISFACTION; INDIVIDUALS; RELIABILITY; EXPERIENCES; APGAR; CARE;
D O I
10.1016/j.apnr.2022.151619
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background: Caring for a family member with schizophrenia is associated with a significant burden, but may also bring about positive transformation among caregivers, which were rarely studied simultaneously. Aims: The current study aims to investigate the association between caregiver burden and positive aspects of caregiving (PAC), as well as explore and compare the correlates of each.Methods: A cross-sectional study was conducted on a representative urban sample of schizophrenia family caregivers in China (N = 406). Participants were interviewed individually to complete questionnaires regarding socio-demographics, caregiver burden, PAC, and psychosocial factors that included social support, coping, and family functioning.Results: The caregivers reported moderate levels of both caregiver burden (mean:43.05 +/- 18.26, range: 0-88) and PAC (mean: 25.88 +/- 9.59, range: 0-36), which were not significantly associated with each other (r =-0.06, p = 0.25) and had different correlates. Parent caregivers, middle and high school education, additional de-pendents, lower level of social support, and frequent endorsement of active and passive coping were all asso-ciated with more caregiver burden. Higher levels of social support, active coping, and family functioning were associated with higher PAC.Conclusions: Caring for a family member with schizophrenia can be both burdensome and rewarding. Caregiver burden and PAC coexist yet are unrelated with different correlates. Future research and intervention programs should not only focus on mitigating caregiver burden but also enhancing PAC, which may be realized through the improvement of social support, active coping, and family functioning while paying special attention to various socio-demographics.
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页数:8
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