The impact of self-advocacy on families of people with learning difficulties has rarely been instigated. A participatory research project is currently studying this question. This paper argues that adulthood is central. The meanings attached to self-advocacy by people with learning difficulties are examined to support this, and the family context explored to discover the likely experiences and influences which will condition the reception for self-advocacy. The early findings of the research-from discussions with self-advocacy groups-are presented. We should expect self-advocacy to impact on families and for this impact to exhibit itself in a variety of ways, but because of the experiences and conditioning of families, and of people with learning difficulties, the impact will be complicated. It is this real experience of self-advocacy and families which the research is investigating.
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Univ Pittsburgh, Palliat Res Ctr PaRC, Pittsburgh, PA 15260 USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Thomas, Teresa Hagan
Scott, Paul W.
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Scott, Paul W.
Nilsen, Marci Lee
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Univ Pittsburgh, Sch Med, Dept Otolaryngol, Pittsburgh, PA USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Nilsen, Marci Lee
Lee, Jiyeon
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Lee, Jiyeon
McCarthy, Mary Ella
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
McCarthy, Mary Ella
Harris, Alexandria
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Univ Pittsburgh, Sch Med, Dept Otolaryngol, Pittsburgh, PA USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA
Harris, Alexandria
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Johnson, Jonas
Donovan, Heidi S.
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Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USAUniv Pittsburgh, Sch Nursing, Pittsburgh, PA 15260 USA