Lessons Learned from Research via Private Social Media Groups

被引:4
|
作者
Kresnye, K. Cassie [1 ]
Maestre, Juan F. [1 ]
Jelen, Ben [1 ]
Alqassim, Mona Y. [2 ]
Wolters, Maria K. [2 ,3 ]
Siek, Katie A. [1 ]
机构
[1] Indiana Univ, Bloomington, IN 47405 USA
[2] Univ Edinburgh, Edinburgh, Midlothian, Scotland
[3] Alan Turing Inst, London, England
基金
英国工程与自然科学研究理事会; 美国国家科学基金会;
关键词
Asynchronous Remote Communities; Facebook; social media; research methods;
D O I
10.1145/3290607.3299055
中图分类号
TP3 [计算技术、计算机技术];
学科分类号
0812 ;
摘要
As research methods evolve to provide a voice to understudied, distributed communities, we explore our experiences running and analyzing Asynchronous Remote Communities (ARC) studies. Our experiences stem from four separate Facebook-based ARC studies with people who experience: rare disease, pregnancy, miscarriage, or HIV. We delve into these studie's methods, and present updated guidelines focused on improved study design, data collection, and analysis plans for ARC studies.
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页数:8
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