Consensus statement of the International Summit on Intellectual Disability and Dementia on valuing the perspectives of persons with intellectual disability

被引:5
|
作者
Watchman, Karen [1 ]
Janicki, Matthew P. [2 ]
Udell, Leslie [3 ]
Hogan, Mary
Quinn, Sam [4 ]
Berankova, Anna [5 ]
机构
[1] Univ Stirling, Stirling, Scotland
[2] Univ Illinois, Chicago, IL 60680 USA
[3] Winnserv Inc, Winnipeg, MB, Canada
[4] Univ West Scotland, Paisley, Renfrew, Scotland
[5] Charles Univ Prague, Prague, Czech Republic
关键词
dementia; Down syndrome; intellectual disability; personal perspectives; self-advocacy; PEOPLE; EXPERIENCE; FUTURE; ADULTS;
D O I
10.1177/1744629517751817
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
The International Summit on Intellectual Disability and Dementia covered a range of issues related to dementia and intellectual disability, including the dearth of personal reflections of persons with intellectual disability affected by dementia. This article reflects on this deficiency and explores some of the personal perspectives gleaned from the literature, from the Summit attendees and from the experiences of persons with intellectual disability recorded or scribed in advance of the two-day Summit meeting. Systemic recommendations included reinforcing the value of the involvement of persons with intellectual disability in (a) research alongside removing barriers to inclusion posed by institutional/ethics review boards, (b) planning groups that establish supports for dementia and (c) peer support. Practice recommendations included (a) valuing personal perspectives in decision-making, (b) enabling peer-to-peer support models, (c) supporting choice in community-dwelling arrangements and (d) broadening availability of materials for persons with intellectual disability that would promote understanding of dementia.
引用
收藏
页码:266 / 280
页数:15
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