Providers' assessment of transition readiness among adolescent and young adult kidney transplant recipients

被引:26
|
作者
Marchak, Jordan Gilleland [1 ,2 ]
Reed-Knight, Bonney [2 ]
Amaral, Sandra [3 ,4 ]
Mee, Laura [5 ,6 ]
Blount, Ronald L. [7 ]
机构
[1] Childrens Healthcare Atlanta, Aflac Canc Ctr, Atlanta, GA USA
[2] Emory Univ, Sch Med, Dept Pediat, Atlanta, GA 30322 USA
[3] Childrens Hosp Philadelphia, Dept Pediat, Philadelphia, PA 19104 USA
[4] Univ Penn, Dept Epidemiol & Biostat, Philadelphia, PA 19104 USA
[5] Childrens Healthcare Atlanta, Dept Transplant Serv, Atlanta, GA USA
[6] Emory Sch Med, Dept Psychiat, Atlanta, GA USA
[7] Univ Georgia, Dept Psychol, Athens, GA 30602 USA
关键词
organ transplants; transition; measures; assessment; adolescent and young adult; pediatric psychology; GENERAL SELF-EFFICACY; ORIENTED CARE; ADHERENCE; OUTCOMES; FAILURE; YOUTH;
D O I
10.1111/petr.12615
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
The Readiness for Transition Questionnaire-provider version (RTQ-Provider) was developed to evaluate adolescent patients' transition readiness and healthcare behaviors from the perspective of the healthcare provider. The RTQ-Provider is a parallel version of the RTQ-Teen and RTQ-Parent completed by patients and parents. This study seeks to evaluate the psychometric properties of the RTQ-Provider and its utility as a clinical transition planning tool. Participants consisted of 49 kidney transplant recipients between the ages of 15 and 21. The RTQ-Provider was completed by the pediatric nephrologist and psychologist from the multidisciplinary healthcare team and compared to RTQ data from teens and parents. The RTQ-Provider demonstrated good-to-excellent internal consistency and interrater reliability. Construct validity was supported through significant predictive relationships between providers' perceptions of transition readiness and older patient age, increased patient healthcare responsibility, and decreased parent involvement in health care. By providing parallel teen, parent, and provider forms, the RTQ has the potential to foster open communication between patients, families, and healthcare team members regarding transition readiness. The study provides initial support for the RTQ-Provider as a clinical tool to assess providers' perceptions of transition readiness; however, future longitudinal research is needed to evaluate predictive validity following patients' transfer to adult care.
引用
收藏
页码:849 / 857
页数:9
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