Assessment of the family environment in pediatric neurodisability: a state-of-the-art review

被引：15

作者：

Ketelaar, Marjolijn ^{[1
,2
]}

Bogossian, Aline ^{[3
,4
]}

Saini, Michael ^{[5
]}

Visser-Meily, Anne ^{[1
,2
]}

Lach, Lucyna ^{[3
,4
]}

机构：

[1] Univ Med Ctr Utrecht, Brain Ctr Rudolf Magnus, Ctr Excellence Rehabil Med, Utrecht, Netherlands

[2] De Hoogstraat Rehabil, Rembrandtkade 10, NL-3583 TM Utrecht, Netherlands

[3] McGill Univ, Sch Social Work, Montreal, PQ, Canada

[4] McGill Univ, Ctr Res Children & Families, Montreal, PQ, Canada

[5] Univ Toronto, Factor Inwentash Fac Social Work, Toronto, ON, Canada

来源：

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | 2017年 / 59卷 / 03期

关键词：

PARENTING STRESS; HEALTH CONDITIONS; CIRCUMPLEX MODEL; CEREBRAL-PALSY; FACES-IV; CHILDREN; DISABILITIES; PERCEPTIONS; MOTHERS; IMPACT;

D O I：

10.1111/dmcn.13287

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

The importance of the family environment for the development of children with neurodisabilities is undisputed. The objective of this study is to describe how family environment has been measured in research on families of children with neurodisabilities, in order to support researchers and clinicians to select appropriate methods for use. A three-step approach was used and 13 measures of family environment were identified within 77 studies. Five measures were used most commonly across a majority of studies (n=50). The measures varied considerably in terms of theoretical background, content, subscales, and populations for which they were developed and validated. These measures were used with considerable variability between studies and with a limited range of research respondents, most typically the child's mother. Challenges, opportunities, and suggestions on how to improve the application of family environment measures in research are discussed.

引用

页码：259 / 269

页数：11

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