Undergoing head and neck cancer surgery: A grounded theory

被引:5
|
作者
Losi, Elisabetta [1 ]
Guberti, Monica [2 ]
Ghirotto, Luca [3 ]
Di Leo, Silvia [4 ]
Bassi, Maria C. [5 ]
Costi, Stefania [6 ,7 ]
机构
[1] Univ Modena & Reggio Emilia, Dept Biomed Metab & Neural Sci, Reggio Emilia, Italy
[2] IRCCS Reggio Emilia, Azienda Unita Sanit Locale, Dept Hlth Profess, Reggio Emilia, Italy
[3] IRCCS Reggio Emilia, Azienda Unita Sanit Locale, Sci Directorate, Reggio Emilia, Italy
[4] IRCCS Reggio Emilia, Azienda Unita Sanit Locale, Psychooncol Unit, Reggio Emilia, Italy
[5] IRCCS Reggio Emilia, Azienda Unita Sanit Locale, Med Lib, I-42123 Reggio Emilia, Italy
[6] IRCCS Reggio Emilia, Azienda Unita Sanit Locale, Children Rehabil Special Unit, Reggio Emilia, Italy
[7] Univ Modena & Reggio Emilia, Dept Surg Med Dent & Morphol Sci Related Transpla, Reggio Emilia, Italy
关键词
decision-making; grounded theory; head and neck cancer; patient participation; preoperative care; surgery; QUALITY-OF-LIFE; ORAL-CANCER; SUPPORT NEEDS; INFORMATION; EXPERIENCE; DISFIGUREMENT; STIGMA;
D O I
10.1111/ecc.13062
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Surgery is the treatment of choice in most head and neck cancers. Very often, the surgery is radical with high impact on the psychosocial, functional and aesthetic fields. The aim of this study is to gain a deeper understanding of the patient's, clinician's and key informant's point of view when surgery is proposed, to improve the quality of pathways in terms of patients' practical, psychological and relational needs. We followed a Grounded Theory approach with semi-structured interviews. Seventeen participants (six patients, nine healthcare professionals and two volunteers) were interviewed immediately before surgery. The study generated a process of "persuading the patient of an obligation" as the core category. The other principal categories that emerged highlighted the patients' doubts and fears regarding the surgery consequences and, in parallel, strategies employed by the healthcare professionals to rebut hindering issues impeding surgery. In particular, healthcare professionals involved patients in an affiliation process through simplified communication to sustain the choice of surgery; the family plays a supportive role in this process. The interplay between the organisational process and patients' experience results in "I will let you convince me" at the end of the decision-making process, where the main aim was to save and be saved.
引用
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页数:10
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