children and youth with special health care needs;
discharge planning;
habilitative services;
home care;
medical home;
technology dependency;
tube feedings;
DISABILITY;
DISTRESS;
D O I:
10.1542/peds.2012-0606
中图分类号:
R72 [儿科学];
学科分类号:
100202 ;
摘要:
Children and youth with complex medical issues, especially those with technology dependencies, experience frequent and often lengthy hospitalizations. Hospital discharges for these children can be a complicated process that requires a deliberate, multistep approach. In addition to successful discharges to home, it is essential that pediatric providers develop and implement an interdisciplinary and coordinated plan of care that addresses the child's ongoing health care needs. The goal is to ensure that each child remains healthy, thrives, and obtains optimal medical home and developmental supports that promote ongoing care at home and minimize recurrent hospitalizations. This clinical report presents an approach to discharging the child with complex medical needs with technology dependencies from hospital to home and then continually addressing the needs of the child and family in the home environment. Pediatrics 2012; 129: 996-1005
机构:
Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
LaRabida Childrens Hosp, Chicago, IL USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
Agrawal, Rishi
Shah, Parag
论文数: 0引用数: 0
h-index: 0
机构:
Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
LaRabida Childrens Hosp, Chicago, IL USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
Shah, Parag
Zebracki, Kathy
论文数: 0引用数: 0
h-index: 0
机构:
Shriners Hosp Children, Chicago, IL USA
Rush Med Coll, Chicago, IL 60612 USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
Zebracki, Kathy
Sanabria, Kathy
论文数: 0引用数: 0
h-index: 0
机构:
Amer Acad Pediat, Chicago, IL USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
Sanabria, Kathy
Kohrman, Claire
论文数: 0引用数: 0
h-index: 0
机构:
Westside Hlth Author, Chicago, IL USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
Kohrman, Claire
Kohrman, Arthur F.
论文数: 0引用数: 0
h-index: 0
机构:
Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USANorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
机构:
Univ Calif San Francisco, San Francisco, CA 94143 USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Cordeiro, Alana
Davis, Renee Krysko
论文数: 0引用数: 0
h-index: 0
机构:
Drexel Univ, Philadelphia, PA 19104 USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Davis, Renee Krysko
Antonelli, Richard
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Boston, MA USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Antonelli, Richard
Rosenberg, Hannah
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Boston, MA USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Rosenberg, Hannah
Kim, John
论文数: 0引用数: 0
h-index: 0
机构:
Drexel Univ, Philadelphia, PA 19104 USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Kim, John
Berhane, Zekarias
论文数: 0引用数: 0
h-index: 0
机构:
Drexel Univ, Philadelphia, PA 19104 USAUniv Calif San Francisco, San Francisco, CA 94143 USA
Berhane, Zekarias
Turchi, Renee
论文数: 0引用数: 0
h-index: 0
机构:
Drexel Univ, Philadelphia, PA 19104 USA
St Christophers Hosp Children, Philadelphia, PA 19134 USAUniv Calif San Francisco, San Francisco, CA 94143 USA
机构:
Univ Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Childrens Hosp Philadelphia, PolicyLab & Ctr Pediat Clin Effectiveness, Philadelphia, PA USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA USA
Childrens Hosp Philadelphia, Roberts Ctr Pediat Res, 2716 South St,Off 10-251, Philadelphia, PA 19146 USAUniv Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Vasan, Aditi
论文数: 引用数:
h-index:
机构:
Kyle, Michael Anne
Venkataramani, Atheendar S.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA USA
Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Philadelphia, PA USAUniv Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Venkataramani, Atheendar S.
Kenyon, Chen C.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Childrens Hosp Philadelphia, PolicyLab & Ctr Pediat Clin Effectiveness, Philadelphia, PA USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA USAUniv Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Kenyon, Chen C.
Fiks, Alexander G.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
Childrens Hosp Philadelphia, PolicyLab & Ctr Pediat Clin Effectiveness, Philadelphia, PA USA
Univ Penn, Leonard Davis Inst Hlth Econ, Philadelphia, PA USAUniv Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA USA
机构:
Edge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Alder Hey Childrens NHS Fdn Trust, Inst Res, Childrens Nursing Res Unit, Liverpool, Merseyside, EnglandEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Carter, Bernie
Bray, Lucy
论文数: 0引用数: 0
h-index: 0
机构:
Alder Hey Childrens NHS Fdn Trust, Inst Res, Childrens Nursing Res Unit, Liverpool, Merseyside, England
Edge Hill Univ, Evidence Based Practice Res Ctr, Fac Hlth & Social Care, Ormskirk, Lancs, EnglandEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Bray, Lucy
Sanders, Caroline
论文数: 0引用数: 0
h-index: 0
机构:
Univ Northern British Columbia, Sch Nursing, Prince George, BC, CanadaEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Sanders, Caroline
van Miert, Clare
论文数: 0引用数: 0
h-index: 0
机构:
Alder Hey Childrens NHS Fdn Trust, Inst Res, Childrens Nursing Res Unit, Liverpool, Merseyside, England
Univ Liverpool, Inst Translat Med, Liverpool L69 3BX, Merseyside, EnglandEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
van Miert, Clare
Hunt, Anne
论文数: 0引用数: 0
h-index: 0
机构:
Univ Cent Lancashire, Sch Nursing, Preston, Lancs, EnglandEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Hunt, Anne
Moore, Andrew
论文数: 0引用数: 0
h-index: 0
机构:
Univ Bristol, Sch Clin Sci, Bristol, Avon, EnglandEdge Hill Univ, Fac Hlth & Social Care, Ormskirk, Lancs, England
Moore, Andrew
COMPREHENSIVE CHILD AND ADOLESCENT NURSING-BUILDNG EVIDENCE FOR PRACTICE,
2016,
39
(02):
: 139
-
153
机构:
Univ Manchester, Natl Primary Care Res & Dev Ctr, Manchester M13 9PL, Lancs, EnglandUniv Manchester, Natl Primary Care Res & Dev Ctr, Manchester M13 9PL, Lancs, England
机构:
Intermt Healthcare, Murray, UT USA
Univ Utah, Dept Biomed Informat, 421 Wakara Way,140 Salt, Salt Lake City, UT 84108 USAIntermt Healthcare, Murray, UT USA
Ranade-Kharkar, Pallavi
论文数: 引用数:
h-index:
机构:
Weir, Charlene
Norlin, Chuck
论文数: 0引用数: 0
h-index: 0
机构:
Univ Utah, Dept Biomed Informat, 421 Wakara Way,140 Salt, Salt Lake City, UT 84108 USA
Univ Utah, Dept Pediat, Hlth Sci Ctr, 421 Wakara Way,140, Salt Lake City, UT 84108 USAIntermt Healthcare, Murray, UT USA
Norlin, Chuck
Collins, Sarah A.
论文数: 0引用数: 0
h-index: 0
机构:
Brigham & Womens Hosp, Partners HealthCare, 75 Francis St, Boston, MA 02115 USA
Harvard Med Sch, Boston, MA USAIntermt Healthcare, Murray, UT USA
Collins, Sarah A.
Scarton, Lou Ann
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h-index: 0
机构:
Univ Utah, Dept Biomed Informat, 421 Wakara Way,140 Salt, Salt Lake City, UT 84108 USAIntermt Healthcare, Murray, UT USA
Scarton, Lou Ann
Baker, Gina B.
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Intermt Healthcare, Murray, UT USAIntermt Healthcare, Murray, UT USA
Baker, Gina B.
Borbolla, Damian
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机构:
Univ Utah, Dept Biomed Informat, 421 Wakara Way,140 Salt, Salt Lake City, UT 84108 USAIntermt Healthcare, Murray, UT USA
Borbolla, Damian
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Taliercio, Vanina
Del Fiol, Guilherme
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Univ Utah, Dept Biomed Informat, 421 Wakara Way,140 Salt, Salt Lake City, UT 84108 USAIntermt Healthcare, Murray, UT USA