Function and well-being in ambulatory children with cerebral palsy

被引:71
|
作者
Pirpiris, M
Gates, PE
McCarthy, JJ
D'Astous, J
Tylkowksi, C
Sanders, JO
Dorey, FJ
Ostendorff, S
Robles, G
Caron, C
Otsuka, NY
机构
[1] Shriners Hosp Children, Los Angeles, CA 90020 USA
[2] Shriners Hosp Children, Shreveport, LA USA
[3] Shriners Hosp Children, Philadelphia, PA USA
[4] Shriners Hosp Children, Salt Lake City, UT USA
[5] Shriners Hosp Children, Lexington, KY USA
[6] Shriners Hosp Children, Erie, PA USA
[7] Univ So Calif, Keck Sch Med, Los Angeles, CA USA
关键词
health related quality of life; wellbeing; function; outcome measures; cerebral palsy; GMFM; GMFCS; FAQ; PODCI; PedsQL;
D O I
10.1097/01.bpo.0000191553.26574.27
中图分类号
R826.8 [整形外科学]; R782.2 [口腔颌面部整形外科学]; R726.2 [小儿整形外科学]; R62 [整形外科学(修复外科学)];
学科分类号
摘要
The purpose of this study was to determine whether there is a significant association between function and well-being in children with cerebral palsy. To determine this, the authors used validated measures of function (Gillette Functional Assessment Questionnaire, Gross Motor Function Classification System, Gross Motor Function Measure, and walking speed) and correlated them to health-related quality of life (HRQOL) measures (Pediatric Outcomes Data Collection Instrument, Pediatric Quality of Life instrument). In a crosssectional study of ambulatory children with mild to moderate cerebral palsy aged 10.2 +/- 3.2 years, mild to moderate decreases in function were found when compared with normative data. As the assessment of HRQOL comprises both functional well-being and psychosocial well-being, the authors decided to specify the aspect of well-being to which they were referring. It was found that the child's function was not correlated to psychosocial well-being. The children with mild cerebral palsy had greater effects on their psychosocial well-being than would be predicted by their functional disability. Functional measures were good at predicting the functional well-being but were weak at predicting the psychosocial arm of well-being.
引用
收藏
页码:119 / 124
页数:6
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