Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals

被引:5
|
作者
Souto-Miranda, Sara [1 ,2 ]
Dias, Claudia [3 ]
Jacome, Cristina [4 ,5 ]
Melo, Elsa [2 ]
Marques, Alda [1 ]
机构
[1] Univ Aveiro, Sch Hlth Sci ESSUA, Lab3R Resp Res & Rehabil Lab, P-3810193 Aveiro, Portugal
[2] Univ Aveiro, Sch Hlth Sci ESSUA, iBiMED Inst Biomed, P-3810193 Aveiro, Portugal
[3] Linde Healthcare, Home Care Dept, P-1200217 Lisbon, Portugal
[4] Univ Porto, Ctr Hlth Technol & Serv Res CINTESIS, Fac Med, P-4200450 Porto, Portugal
[5] Univ Porto, Fac Med, Dept Community Med Informat & Hlth Decis Sci MEDC, P-4200450 Porto, Portugal
关键词
chronic respiratory diseases; maintenance strategies; pulmonary rehabilitation; physical activity; REPORTING QUALITATIVE RESEARCH; PHYSICAL-ACTIVITY; BENEFITS; COPD;
D O I
10.3390/healthcare10010119
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Pulmonary rehabilitation (PR) is an effective intervention for people with chronic respiratory diseases (CRD); however, its effects fade after 6-12 months. Community-based strategies might be valuable to sustain PR benefits, but this has been little explored. People with CRD, informal carers, and healthcare professionals (HCPs) were recruited from pulmonology appointments of two local hospitals, two primary care centres, and one community institutional practice and through snowballing technique. Focus groups were conducted using a semi-structured guide. Data were thematically analysed. Twenty-nine people with CRD (24% female, median 69 years), 5 informal carers (100% female, median 69 years), and 16 HCPs (75% female, median 36 years) were included. Three themes were identified: "Maintaining an independent and active lifestyle" which revealed common strategies adopted by people with "intrinsic motivation and professional and peer support" as key elements to maintain benefits, and that "access to information and partnerships with city councils' physical activities" were necessary future steps to sustain active lifestyles. This study suggests that motivation, and professional and peer support are key elements to maintaining the benefits of PR in people with CRD, and that different physical activity options (independent or group activities) considering peoples' preferences, should be available through partnerships with the community, namely city councils.
引用
收藏
页数:10
相关论文
共 50 条
  • [31] "Was that a success or not a success?": a qualitative study of health professionals' perspectives on support for people with long-term conditions
    Owens, John
    Entwistle, Vikki A.
    Cribb, Alan
    Skea, Zoe C.
    Christmas, Simon
    Morgan, Heather
    Watt, Ian S.
    BMC FAMILY PRACTICE, 2017, 18
  • [32] Clinical features and prognosis in patients with chronic pulmonary diseases on long-term oxygen
    Tsuboi, E
    Kawabata, M
    Kishi, K
    Narui, K
    Homma, S
    Nakatani, K
    Nakata, K
    AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 1999, 159 (03) : A393 - A393
  • [33] POSITIVE EXPERIENCES OF ENCOUNTERS WITH HEALTHCARE AND SOCIAL INSURANCE PROFESSIONALS AMONG PEOPLE ON LONG-TERM SICK LEAVE
    Mussener, Ulrika
    Festin, Karin
    Upmark, Marianne
    Alexanderson, Kristina
    JOURNAL OF REHABILITATION MEDICINE, 2008, 40 (10) : 805 - 811
  • [34] The long-term effects of pulmonary rehabilitation in patients with asthma and chronic obstructive pulmonary disease: A research synthesis
    Cambach, W
    Wagenaar, RC
    Koelman, TW
    van Keimpema, ARJT
    Kemper, HCG
    ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 1999, 80 (01): : 103 - 111
  • [35] Long-term effects of home rehabilitation on physical performance in chronic obstructive pulmonary disease
    Wijkstra, PJ
    vanderMark, TW
    Kraan, J
    vanAltena, R
    Koeter, GH
    Postma, DS
    AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 1996, 153 (04) : 1234 - 1241
  • [36] Clinical effectiveness and components of Home-pulmonary rehabilitation for people with chronic respiratory diseases: a systematic review protocol
    Uzzaman, Md Nazim
    Chan, Soo Chin
    Shunmugam, Ranita Hisham
    Engkasan, Julia Patrick
    Agarwal, Dhiraj
    Habib, G. M. Monsur
    Hanafi, Nik Sherina
    Jackson, Tracy
    Jebaraj, Paul
    Khoo, Ee Ming
    Liew, Su May
    Mirza, Fatim Tahirah
    Pinnock, Hilary
    Rabinovich, Roberto A.
    BMJ OPEN, 2021, 11 (10):
  • [37] Benefits of Long-Term Pulmonary Rehabilitation Maintenance Program in Patients with Severe Chronic Obstructive Pulmonary Disease Three-Year Follow-up
    Gueell, Maria-Rosa
    Cejudo, Pilar
    Ortega, Francisco
    Carmen Puy, M.
    Rodriguez-Trigo, Gema
    Ignacio Pijoan, Jose
    Martinez-Indart, Lorea
    Gorostiza, Amaia
    Bdeir, Khaled
    Celli, Bartolome
    Galdiz, Juan B.
    AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2017, 195 (05) : 622 - 629
  • [38] Long-term outcome prediction for chronic thromboembolic pulmonary hypertension after pulmonary endarterectomy
    Song, Wu
    Zhu, Jiade
    Zhong, ZhaoJi
    Song, Yunhu
    Liu, Sheng
    CLINICAL CARDIOLOGY, 2022, 45 (12) : 1255 - 1263
  • [39] Long-term Outcomes and Predictors of Chronic Thromboembolic Pulmonary Hypertension After Pulmonary Endarterectomy
    Sun, Shuai
    Li, Ji-Feng
    Liu, Lin
    Miao, Ran
    Yang, Su-Qiao
    Kuang, Tu-Guang
    Gong, Juan-Ni
    Gu, Song
    Liu, Yan
    Yang, Yuan-Hua
    CLINICAL AND APPLIED THROMBOSIS-HEMOSTASIS, 2022, 28
  • [40] Long-term Outcomes and Predictors of Chronic Thromboembolic Pulmonary Hypertension After Pulmonary Endarterectomy
    Sun, Shuai
    Li, Ji-Feng
    Liu, Lin
    Miao, Ran
    Yang, Su-Qiao
    Kuang, Tu-Guang
    Gong, Juan-Ni
    Gu, Song
    Liu, Yan
    Yang, Yuan-Hua
    CLINICAL AND APPLIED THROMBOSIS-HEMOSTASIS, 2022, 28