Introducing personalized health for the family: the experience of a single hospital system

被引:9
|
作者
Huddleston, Kathi L. [1 ]
Klein, Elisabeth [1 ]
Fuller, Alma [1 ]
Jo, Grace [1 ]
Lawrence, Grace [1 ]
Haga, Susanne B. [2 ]
机构
[1] Inova Hosp Syst, Inova Translat Med Inst, Falls Church, VA 22042 USA
[2] Duke Univ, Sch Med, Ctr Appl Genom & Precis Med, Durham, NC 27708 USA
关键词
newborns; patient education; pharmacogenetic testing; pre-emptive testing; PHARMACOGENOMICS; MEDICINE; DESIGN; RISK;
D O I
10.2217/pgs-2017-0112
中图分类号
R9 [药学];
学科分类号
1007 ;
摘要
Pharmacogenetic testing is leading the personalized health movement, gradually being implemented in a variety of healthcare settings. To inform the efforts of other hospital and clinical practices implementing personalized health or medicine applications, we describe the implementation of a newborn pharmacogenetic testing program at Inova Health System (VA, USA). In particular, we describe the efforts to gather patient feedback through focus groups, the training and program staff, the pilot program and our experiences to date. In our experience, a multidisciplinary team was essential to address the myriad facets of program development and implementation as well as an in-person approach to introduce testing and patient education.
引用
收藏
页码:1589 / 1594
页数:6
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