Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short-term respite care is a valued service that offers a temporary break from the role. Respite cottages provide short-term care in a residential home-like setting with a limited number of clients and is a more flexible approach to accessing the service. Disproportionate use of cottage respite in Australia suggests this model is preferred over traditional respite within residential aged care facility (RACF) settings, yet limited research exists to compare these models. This study sought to understand the perceptions of carers who had used cottage respite in comparison to other models, and explore the contribution of cottage respite for supporting carers to continue in their role and maintain their care recipient (CR) living at home. Semi-structured interviews were conducted with 126 family carers who had used one of two New South Wales-based respite cottages within a 2-year period; 67 of whom had also used RACF respite. Thematic analysis revealed four main themes around the benefits of cottage respite: (a) an effective essential service, (b) flexibility, (c) familiarity and (d) appropriateness, especially for early stage or younger onset dementia. Carers indicated that the more homely, familiar and intimate cottage model of respite care was preferential to that of the larger, institutional-style RACF respite setting. Carers credited the cottage model of respite service with delaying their need for permanent residential placement by over 12 months. The cottage respite model provides an important avenue to supporting the individual needs of dementia dyads, with potential to delay permanent placement, and should be offered more broadly to provide people with more choice about their care.
机构:
Univ Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Phillipson, L.
Johnson, K.
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Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Johnson, K.
Cridland, E.
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Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Cridland, E.
Hall, D.
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Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Hall, D.
Neville, C.
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Univ Southern Queensland, Sch Nursing & Midwifery, Fac Hlth Engn & Sci, Toowoomba, Qld, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Neville, C.
Fielding, E.
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Queensland Univ Technol, Fac Hlth, Dementia Ctr Res Collaborat, Brisbane, Qld, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
Fielding, E.
Hasan, H.
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Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Sch Hlth & Soc, Fac Social Sci, Wollongong, NSW, Australia
机构:
La Trobe Univ, Australian Ctr Evidence Based Aged Care, Melbourne, Vic, AustraliaLa Trobe Univ, Australian Ctr Evidence Based Aged Care, Melbourne, Vic, Australia
Rayner, Jo-Anne
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Solly, Kane
McAuliffe, Linda
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La Trobe Univ, Australian Ctr Evidence Based Aged Care, Melbourne, Vic, AustraliaLa Trobe Univ, Australian Ctr Evidence Based Aged Care, Melbourne, Vic, Australia
机构:
Kings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
NIHR Appl Res Collaborat South London, London, EnglandKings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
Samsi, Kritika
Orellana, Katharine
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Kings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
NIHR Appl Res Collaborat South London, London, EnglandKings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
Orellana, Katharine
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Cole, Laura
Manthorpe, Jill
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Kings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
NIHR Appl Res Collaborat South London, London, EnglandKings Coll London, NIHR Policy Res Unit Hlth & Social Care Workforce, London WC2R 2lS, England
机构:
Univ Wollongong, Ctr Digital Transformat, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Zhu, Yunshu
Song, Ting
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Univ Wollongong, Ctr Digital Transformat, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Song, Ting
Zhang, Zhenyu
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Univ Wollongong, Ctr Digital Transformat, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Zhang, Zhenyu
Deng, Chao
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Univ Wollongong, Sch Comp & Informat Technol, Sch Med, Wollongong, NSW, Australia
Illawarra Hlth & Med Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Deng, Chao
Alkhalaf, Mohammad
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Univ Wollongong, Ctr Digital Transformat, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Alkhalaf, Mohammad
Li, Wanqing
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Univ Wollongong, Artificial Intelligence Res Ctr, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Li, Wanqing
Yin, Mengyang
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Catholic Healthcare Ltd, Syst & Reporting Residential Care, Macquarie Pk, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Yin, Mengyang
Chang, Hui Chen
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Univ Wollongong, Sch Nursing, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Chang, Hui Chen
Yu, Ping
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Univ Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
Illawarra Hlth & Med Res Inst, Wollongong, NSW, AustraliaUniv Wollongong, Ctr Digital Transformat, Wollongong, NSW, Australia
机构:
Univ Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Austin Hlth, Royal Talbot Rehabil Ctr, Melbourne, Vic, AustraliaUniv Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Lee, Young-Eun C.
Stretton-Smith, Phoebe A.
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Univ Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, AustraliaUniv Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Stretton-Smith, Phoebe A.
Tamplin, Jeanette
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Univ Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Austin Hlth, Royal Talbot Rehabil Ctr, Melbourne, Vic, AustraliaUniv Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Tamplin, Jeanette
Sousa, Tanara Vieira
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Univ Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, AustraliaUniv Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Sousa, Tanara Vieira
Baker, Felicity A.
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Univ Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia
Norwegian Acad Mus, Ctr Res Mus & Hlth, Oslo, NorwayUniv Melbourne, Fac Fine Arts & Mus, Creat Arts & Mus Therapy Res Unit, Melbourne, Vic, Australia