Common data elements for clinical research in mitochondrial disease: a National Institute for Neurological Disorders and Stroke project (vol 40, pg 403, 2017)

被引：1

作者：

Karaa, Amel ^{[1
]}

Rahman, Shamima ^{[2
]}

Lombes, Anne ^{[3
]}

Yu-Wai-Man, Patrick ^{[4
,5
,6
]}

Sheikh, Muniza K. ^{[7
]}

Alai-Hansen, Sherita ^{[7
]}

Cohen, Bruce H. ^{[8
]}

Dimmock, David ^{[9
]}

Emrick, Lisa ^{[10
]}

Falk, Marni J. ^{[11
,12
]}

McCormack, Shana ^{[11
,12
]}

Mirsky, David ^{[13
]}

Moore, Tony ^{[14
,15
,16
]}

Parikh, Sumit ^{[17
]}

Shoffner, John

Taivassalo, Tanja ^{[18
]}

Tarnopolsky, Mark ^{[19
]}

Tein, Ingrid ^{[20
]}

Odenkirchen, Joanne C. ^{[21
]}

Goldstein, Amy ^{[22
]}

机构：

[1] Massachusetts Gen Hosp, Boston, MA 02114 USA

[2] UCL Great Ormond St Inst Child Hlth, London, England

[3] INSERM, Inst Cochin U1016, Paris, France

[4] Newcastle Univ, Wellcome Trust Ctr Mitochondrial Res, Newcastle Upon Tyne, Tyne & Wear, England

[5] Moorfields Eye Hosp, NIHR Biomed Res Ctr, London, England

[6] UCL Inst Ophthalmol, London, England

[7] Emmes Corp, Rockville, MD USA

[8] Akron Childrens Hosp, Akron, OH USA

[9] Med Coll Wisconsin, Milwaukee, WI 53226 USA

[10] Baylor Coll Med, Houston, TX 77030 USA

[11] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA

[12] Univ Penn, Perelman Sch Med, Philadelphia, PA 19104 USA

[13] Childrens Hosp Colorado, Aurora, CO USA

[14] UCL, Inst Ophthalmol, London, England

[15] Moorfields Eye Hosp, London, England

[16] Univ Calif San Francisco, Dept Ophthalmol, San Francisco, CA USA

[17] Cleveland Clin, Cleveland, OH 44106 USA

[18] McGill Univ, Montreal, CA USA

[19] McMaster Univ, Hamilton, ON, Canada

[20] Univ Toronto, Hosp Sick Children, Toronto, ON, Canada

[21] NINDS, NIH, Bldg 36,Rm 4D04, Bethesda, MD 20892 USA

[22] Childrens Hosp Pittsburgh, 4401 Penn Ave, Pittsburgh, PA 15224 USA

来源：

JOURNAL OF INHERITED METABOLIC DISEASE | 2018年 / 41卷 / 01期

基金：

英国医学研究理事会;

关键词：

D O I：

10.1007/s10545-017-0081-z

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：151 / 151

页数：1

共 50 条

[31] Streamlining Clinical Research in SportsRelated Concussion: The National Institute of Neurological Disorders and Stroke (NINDS)/National Institutes of Health (NIH), and Department of Defense (DOD) SportRelated Concussion Common Data Elements (CDEs)
Joseph, Kristen
Alai, Sherita
Esterlitz, Joy
Gay, Katelyn
Bellgowan, Patrick
NEUROLOGY, 2018, 90
[32] NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS), NATIONAL INSTITUTES OF HEALTH (NIH), COMMON DATA ELEMENT (CDE) PROJECT: EPILEPSY CDE UPDATE
Trollinger, S.
Frazier, C.
Kunitz, S.
Miller, K.
Stout, A.
Fureman, B.
Jacobs, M.
Odenkirchen, J.
EPILEPSIA, 2009, 50 : 158 - 158
[33] National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project: Developing General and Disease-Specific CDEs
Trollinger, Stacie L.
Odenkirchen, Joanne C.
Miller, Kristy L.
Stout, Alexandra
McDowell, Katherine
Hunegs, Lisa
Kunitz, Selma C.
NEUROLOGY, 2010, 74 (09) : A52 - A53
[34] A Common Data Language for Clinical Research Studies: The National Institute of Neurological Disorders and Stroke (NINDS) and American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) Cerebral Palsy Common Data Elements Version 1.0 Recommendations
Feldman, Robin
Odenkirchen, Joanne
Alai, Sherita
Esterlitz, Joy
Burr, Tracy
NEUROLOGY, 2017, 88
[35] The National Institute of Neurological Disorders and Stroke Clinical Research Collaboration: Connecting Research to Communities by Expanding Research Access
Lindblad, Anne S.
Burke, Carolyn
Emr, Marian A.
Odenkirchen, Joanne C.
Fureman, Brandy E.
NEUROLOGY, 2009, 72 (11) : A424 - A424
[36] National Institute of Neurological Disorders and Stroke and Department of Defense Sport-Related Concussion Common Data Elements Version 1.0 Recommendations
Broglio, Steven P.
Kontos, Anthony P.
Levin, Harvey
Schneider, Kathryn
Wilde, Elisabeth A.
Cantu, Robert C.
Feddermann-Demont, Nina
Fuller, Gordon W.
Gagnon, Isabelle
Gioia, Gerard A.
Giza, Christopher
Griesbach, Grace S.
Leddy, John J.
Lipton, Michael L.
Mayer, Andrew R.
McAllister, Thomas W.
McCrea, Michael
McKenzie, Lara B.
Putukian, Margot
Signoretti, Stefano
Suskauer, Stacy J.
Tamburro, Robert
Turner, Michael
Yeates, Keith O.
Zemek, Roger
Ala'i, Sherita
Esterlitz, Joy
Gay, Katelyn
Bellgowan, Patrick S. F.
Joseph, Kristen
JOURNAL OF NEUROTRAUMA, 2018, 35 (23) : 2776 - 2783
[37] Chiari I Malformation Common Data Element Project: The National Institute of Neurological Disorders and Stroke (NINDS) Chiari I Malformation Common Data Elements (CDE) Recommendations Version 1.0 Website Release
Feldman, Robin
Alai, Sherita
Odenkirchen, Joanne
Joseph, Kristen
Esposito, Kaitlyn
Poppe, Dorothy
NEUROLOGY, 2017, 88
[38] A common data language for biomechanical devices used in TBI clinical research: The National Institute of Neurological Disorders and Stroke (NINDS) and Department of Defense (DoD) CDE recommendations
Gay, Katelyn Elizabeth
Bartsch, Adam
Camarillo, David
Taylor-Burds, Carol
Sheikh, Muniza
Esterlitz, Joy R.
Joseph, Kristen R.
Mendoza-Puccini, Carolina
Bellgowan, Patrick
NEUROLOGY, 2018, 91 (23)
[39] A common data language for biomechanical devices used in TBI clinical research: The National Institute of Neurological Disorders and Stroke (NINDS) and Department of Defense (DoD) CDE recommendations
Gay, Katelyn Elizabeth
Bartsch, Adam
Camarillo, David
Taylor-Burds, Carol
Sheikh, Muniza
Esterlitz, Joy R.
Joseph, Kristen R.
Mendoza-Puccini, Carolina
Bellgowan, Patrick
NEUROLOGY, 2018, 91 : S3 - S3
[40] Priorities for clinical research in intracerebral hemorrhage - Report from a National Institute of Neurological Disorders and Stroke Workshop
Morgenstern, LB
Woodbury-Harris, K
Marler, JR
STROKE, 2005, 36 (03) : E23 - E41

← 1 2 3 4 5 →