Provider Perspectives on the Feasibility and Utility of Routine Patient-Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis

被引:35
|
作者
Wohlfahrt, Peter [1 ]
Zickmund, Susan L. [1 ]
Slager, Stacey [1 ]
Allen, Larry A. [2 ]
Nicolau, Jose Nativi [1 ]
Kfoury, Abdallah G. [3 ]
Felker, G. Michael [4 ]
Conte, Jorge [1 ]
Flint, Kelsey [2 ,5 ]
DeVore, Adam D. [4 ]
Selzman, Craig H. [1 ]
Hess, Rachel [1 ]
Spertus, John A. [6 ]
Stehlik, Josef [1 ]
机构
[1] Univ Utah, Sch Med, Salt Lake City, UT USA
[2] Univ Colorado, Anschutz Med Campus, Aurora, CO USA
[3] Intermt Med Ctr, Murray, UT USA
[4] Duke Univ, Med Ctr, Div Cardiol, Durham, NC 27710 USA
[5] Rocky Mt Reg VA Med Ctr, Aurora, CO USA
[6] Lukes Mid Amer Heart Inst, Kansas City, MO USA
来源
关键词
patient reported outcome; qualitative research; quality of life; HEALTH-STATUS; CLINICAL-PRACTICE; OF-LIFE; HOSPITALIZATION; ASSOCIATION; PREFERENCES; RISK;
D O I
10.1161/JAHA.119.013047
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background Patient-reported outcomes (PROs) objectively measure health-related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient-friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. Methods and Results Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure-specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. Conclusions Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics.
引用
收藏
页数:25
相关论文
共 50 条
  • [41] Patient-reported outcomes in routine care: impact for TwiCs
    Vickers, Andrew
    TRIALS, 2017, 18
  • [42] The Growing Case for Routine Collection of Patient-Reported Outcomes
    Heidenreich, Paul A.
    JAMA CARDIOLOGY, 2021, 6 (05) : 497 - 498
  • [43] Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes
    Robson, Joanna C.
    Jayne, David
    Merkel, Peter A.
    Dawson, Jill
    PATIENT-RELATED OUTCOME MEASURES, 2019, 10 : 37 - 42
  • [44] Clinicians' perspectives on the integration of electronic patient-reported outcomes into dermatology clinics: a qualitative study
    Taliercio, Vanina L.
    Snyder, Ashley M.
    Biggs, Allison M.
    Kean, Jacob
    Hess, Rachel
    Duffin, Kristina Callis
    Cizik, Amy M.
    Secrest, Aaron M.
    QUALITY OF LIFE RESEARCH, 2022, 31 (06) : 1719 - 1725
  • [45] Clinicians’ perspectives on the integration of electronic patient-reported outcomes into dermatology clinics: a qualitative study
    Vanina L. Taliercio
    Ashley M. Snyder
    Allison M. Biggs
    Jacob Kean
    Rachel Hess
    Kristina Callis Duffin
    Amy M. Cizik
    Aaron M. Secrest
    Quality of Life Research, 2022, 31 : 1719 - 1725
  • [46] Patient-Reported Outcome Instruments in Heart Failure
    Psotka, Mitchell A.
    Teerlink, John R.
    JACC-HEART FAILURE, 2018, 6 (07) : 561 - 563
  • [47] Clinical Impact of Routine Assessment of Patient-Reported Health Status in Heart Failure Clinic: The PRO-HF Trial
    Sandhu, Alexander T.
    Calma, Jamie
    Skye, Megan
    Kalwani, Neil
    Zheng, Jimmy
    Schirmer, Jessica
    Din, Natasha
    Johnson, Cati Brown
    Gupta, Anshal
    Lan, Roy
    Yu, Brian
    Spertus, John A.
    Heidenreich, Paul A.
    CIRCULATION, 2024, 149 (22) : 1717 - 1728
  • [48] Financial difficulties and patient-reported outcomes among patients with advanced heart failure
    Malhotra, Chetna
    Bundoc, Filipinas
    Ang, Felicia Jia Ler
    Ozdemir, Semra
    Teo, Irene
    Sim, David
    Jaufeerally, Fazlur Rehman
    Aung, Than
    Finkelstein, Eric
    QUALITY OF LIFE RESEARCH, 2021, 30 (05) : 1379 - 1387
  • [49] PATIENT-REPORTED OUTCOMES IN HEART FAILURE CLINICAL TRIALS: TRENDS, UTILIZATION, AND IMPLICATIONS
    Liu, Xichong
    Lan, Roy
    JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY, 2024, 83 (13) : 756 - 756
  • [50] SLEEP AND PATIENT-REPORTED OUTCOMES IN PERSONS WITH HEART FAILURE WITH PRESERVED EJECTION FRACTION
    Baniak, L. M.
    Atwood, C. W.
    Strollo, P. J.
    Forman, D. E.
    Chasens, E. R.
    SLEEP, 2020, 43 : A392 - A393