Provider Perspectives on the Feasibility and Utility of Routine Patient-Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis

被引:35
|
作者
Wohlfahrt, Peter [1 ]
Zickmund, Susan L. [1 ]
Slager, Stacey [1 ]
Allen, Larry A. [2 ]
Nicolau, Jose Nativi [1 ]
Kfoury, Abdallah G. [3 ]
Felker, G. Michael [4 ]
Conte, Jorge [1 ]
Flint, Kelsey [2 ,5 ]
DeVore, Adam D. [4 ]
Selzman, Craig H. [1 ]
Hess, Rachel [1 ]
Spertus, John A. [6 ]
Stehlik, Josef [1 ]
机构
[1] Univ Utah, Sch Med, Salt Lake City, UT USA
[2] Univ Colorado, Anschutz Med Campus, Aurora, CO USA
[3] Intermt Med Ctr, Murray, UT USA
[4] Duke Univ, Med Ctr, Div Cardiol, Durham, NC 27710 USA
[5] Rocky Mt Reg VA Med Ctr, Aurora, CO USA
[6] Lukes Mid Amer Heart Inst, Kansas City, MO USA
来源
关键词
patient reported outcome; qualitative research; quality of life; HEALTH-STATUS; CLINICAL-PRACTICE; OF-LIFE; HOSPITALIZATION; ASSOCIATION; PREFERENCES; RISK;
D O I
10.1161/JAHA.119.013047
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background Patient-reported outcomes (PROs) objectively measure health-related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient-friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. Methods and Results Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure-specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. Conclusions Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics.
引用
收藏
页数:25
相关论文
共 50 条
  • [1] PROVIDER PERSPECTIVES ON THE FEASIBILITY AND UTILITY OF ROUTINE PATIENT-REPORTED OUTCOMES ASSESSMENT IN HEART FAILURE: A QUALITATIVE ANALYSIS
    Wohlfahrt, Peter
    Zickmund, Susan
    Slager, Stacey
    Allen, Larry
    Nativi-Nicolau, Jose
    Kfoury, Abdallah
    Felker, G. Michael
    DeVore, Adam
    Hess, Rachel
    Spertus, John A.
    Stehlik, Josef
    JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY, 2019, 73 (09) : 971 - 971
  • [2] Evaluating the Implementation of Patient-Reported Outcomes in Heart Failure Clinic: A Qualitative Assessment
    Brown-Johnson, Cati
    Calma, Jamie
    Amano, Alexis
    Winget, Marcy
    Harris, Sonia R.
    Vilendrer, Stacie
    Asch, Steve M.
    Heidenreich, Paul
    Sandhu, Alexander T.
    Kalwani, Neil M.
    CIRCULATION-CARDIOVASCULAR QUALITY AND OUTCOMES, 2023, 16 (05): : 363 - 372
  • [3] Patient-Reported Outcomes in Heart Failure
    Fonarow, Gregg C.
    Tang, Amber B.
    JACC-HEART FAILURE, 2025, 13 (02) : 293 - 295
  • [4] Understanding patient outcomes to develop a multimorbidity adapted patient-reported outcomes measure: a qualitative description of patient and provider perspectives
    Maxime Sasseville
    Maud-Christine Chouinard
    Martin Fortin
    Health and Quality of Life Outcomes, 19
  • [5] Understanding patient outcomes to develop a multimorbidity adapted patient-reported outcomes measure: a qualitative description of patient and provider perspectives
    Sasseville, Maxime
    Chouinard, Maud-Christine
    Fortin, Martin
    HEALTH AND QUALITY OF LIFE OUTCOMES, 2021, 19 (01)
  • [6] Implementation of Real-Time Assessment of Patient-Reported Outcomes in a Heart Failure Clinic: A Feasibility Study
    Stehlik, Josef
    Rodriguez-Correa, Carlos
    Spertus, John A.
    Biber, Joshua
    Nativi-Nicolau, Jose
    Zickmund, Susan
    Steinberg, Benjamin A.
    Peritz, David C.
    Walker, Andrew
    Hess, Jordan
    Drakos, Stavros G.
    Kfoury, Abdallah G.
    Fang, James C.
    Selzman, Craig H.
    Hess, Rachel
    JOURNAL OF CARDIAC FAILURE, 2017, 23 (11) : 813 - 816
  • [7] Assessment of patient-reported outcomes measures in heart failure: a systematic review
    Mendes, Joao Lazaro
    dos Santos, Cristina Mendes
    Sousa-Pinto, Bernardo
    HEART FAILURE REVIEWS, 2024, 29 (04) : 853 - 867
  • [8] Utility of Patient-Reported Outcome Instruments in Heart Failure
    Kelkar, Anita A.
    Spertus, John
    Pang, Peter
    Pierson, Renee F.
    Cody, Robert J.
    Pina, Ileana L.
    Hernandez, Adrian
    Butler, Javed
    JACC-HEART FAILURE, 2016, 4 (03) : 165 - 175
  • [9] Use of patient-reported outcomes in heart failure: from clinical trials to routine practice
    Savarese, Gianluigi
    Lindenfeld, Joann
    Stolfo, Davide
    Adams, Kirkwood
    Ahmad, Tariq
    Desai, Nihar R. R.
    Ammirati, Enrico
    Gottlieb, Stephen S. S.
    Psotka, Mitchell A. A.
    Rosano, Giuseppe M. C.
    Allen, Larry A. A.
    EUROPEAN JOURNAL OF HEART FAILURE, 2023, 25 (02) : 139 - 151
  • [10] Patient Perspectives on the Completion and Use of Patient-Reported Outcome Surveys in Routine Clinical Care for Heart Failure
    Mondesir, Favel L.
    Zickmund, Susan L.
    Yang, Serena
    Perry, Grace
    Galyean, Patrick
    Nativi-Nicolau, Jose
    Kemeyou, Line
    Spertus, John A.
    Stehlik, Josef
    CIRCULATION-CARDIOVASCULAR QUALITY AND OUTCOMES, 2020, 13 (09): : 695 - 697