Palliative care and neurology: a path to neuropalliativism

被引:0
|
作者
Marcondes da Silveira, Mariana Ribeiro [1 ,2 ]
Forte, Daniel Neves [3 ,4 ]
机构
[1] Univ Sao Paulo, Hosp Clin, Fac Med, Div Neurol, Sao Paulo, SP, Brazil
[2] Univ Sao Paulo, Hosp Clin, Fac Med, Inst Crianca,Unidade Dor & Cuidados Paliat, Sao Paulo, SP, Brazil
[3] Univ Sao Paulo, Hosp Clin, Fac Med, Dept Emergencias Clincias, Sao Paulo, SP, Brazil
[4] Hosp Sirio Libanes, Nucleo Cuidados Paliat, Sao Paulo, SP, Brazil
关键词
Neurology; Palliative Care;
D O I
10.1590/0004-282X-ANP-2022-S119
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
This article aims to expand the understanding of how it is possible to alleviate suffering and enable a dignified life trajectory for patients with progressive neurological diseases or with severe and permanent neurological impairment. The four most common disease trajectories described for people with chronic and progressive disease used to advance care planning, Brazilian normative ethical resolutions, evidence-based benefits of palliative care (PC), as well as particularities of PC in neurology, such as neurological symptom control, caring for existential and psychological suffering, care provider's needs and particularities of pediatric neurologic PC are reviewed.
引用
收藏
页码:328 / 335
页数:8
相关论文
共 50 条
  • [41] Mapping the Literature: Palliative Care Within Adult and Child Neurology
    Dallara, Alexis
    Meret, Anca
    Saroyan, John
    JOURNAL OF CHILD NEUROLOGY, 2014, 29 (12) : 1728 - 1738
  • [42] Learning Path internal palliative care structures
    Denis-Delpierre, Nathalie
    Galle-Gaudin, Caroline
    Hirsh, Godefroy
    Mallet, Donatien
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2016, 52 (06) : E62 - E63
  • [43] PALLIATIVE THERAPY IN NEUROLOGY
    VOLTZ, R
    BORASIO, GD
    NERVENARZT, 1994, 65 (04): : 220 - 225
  • [44] European Academy of Neurology/European Association for Palliative Care Taskforce on Neurology Consensus recommendations on palliative care for patients with chronic and progressive neurological disease - acceptability for Belgian neurologists
    Vanopdenbosch, L. J.
    Maes, E.
    Oliver, D. J.
    EUROPEAN JOURNAL OF NEUROLOGY, 2017, 24 (07) : 995 - 998
  • [45] Palliative medicine in neurology
    Joerg, J.
    NERVENHEILKUNDE, 2013, 32 (09) : 635 - +
  • [46] Palliative Care Needs in Oncology, Cardiology, and Neurology Clinic Patients in the USA
    Dudley, Nancy
    Ritchie, Christine S.
    Stijacic-Cenzer, Irena
    Lee, Sei J.
    JOURNAL OF GENERAL INTERNAL MEDICINE, 2019, 34 (07) : 1100 - 1102
  • [47] Palliative care in neonatal neurology: robust support for infants, families and clinicians
    Lemmon, M. E.
    Bidegain, M.
    Boss, R. D.
    JOURNAL OF PERINATOLOGY, 2016, 36 (05) : 331 - 337
  • [48] Palliative Care Needs in Oncology, Cardiology, and Neurology Clinic Patients in the USA
    Nancy Dudley
    Christine S. Ritchie
    Irena Stijacic-Cenzer
    Sei J. Lee
    Journal of General Internal Medicine, 2019, 34 : 1100 - 1102
  • [49] The collaboration between neurology and palliative care for people with ALS/MND in the UK
    Oliver, D.
    Baker, I.
    Faull, C.
    Stockdale, C.
    EUROPEAN JOURNAL OF NEUROLOGY, 2021, 28 : 349 - 349
  • [50] Neurology resident learning in an end-of-life/palliative care course
    Schuh, Lori A.
    Biondo, Andrew
    An, Andrea
    Newman, Dan
    Ryczko, Stephanie
    Remer, Sandra
    Bricker, Leslie
    JOURNAL OF PALLIATIVE MEDICINE, 2007, 10 (01) : 178 - 181