Quality of life measurement in dermatology consultation: impact on patient reported outcomes

被引:0
|
作者
Salek, M. S. [1 ]
Kamudoni, P. [1 ]
机构
[1] Cardiff Univ, Cardiff Sch Pharm & Pharmaceut Sci, Ctr Socioecon Res, Cardiff CF10 3NB, S Glam, Wales
来源
关键词
Outcome assessment (health care); Quality of life; Clinical protocols; Diagnostic tests; routine; CLINICAL DECISION-MAKING; HEALTH-STATUS; NONCLINICAL INFLUENCES; ROUTINE PRACTICE; SKIN DISEASES; INSTRUMENTS; INDEX; CARE; HYPERHIDROSIS; IMPAIRMENT;
D O I
暂无
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
It is now recognized that therapy should not only seek to cure disease, but also to affect outcomes that matter to the patients the most; those related to their functioning in their everyday life and their overall quality of life. In those situations where elimination of disease/complete cure is not possible for example in chronic conditions, limiting the complications from the illness, so that patients can still maintain a comfortable and satisfying life, becomes the goal of treatment. This coupled with the growing patient rights movement and the need for patients to be a part of treatment decision-making process means that patient's health-related quality of life is no longer just an important consequence of health-care, but it is increasingly regarded as an explicit ultimate goal.
引用
收藏
页码:263 / 275
页数:13
相关论文
共 50 条
  • [41] Patient-Reported Quality of Life Outcomes in Hypertrophic Cardiomyopathy Patients
    Xu, Samantha
    Zheng, Wynne
    Szpakowski, Natalie M.
    Bittel, Barbara
    Ospina, Susan
    Smedira, Nicholas G.
    Lever, Harry M.
    Popovic, Zoran B.
    Frank, Scott
    Desai, Milind Y.
    CIRCULATION, 2021, 144
  • [42] Current state of quality of life and patient-reported outcomes research
    Bottomley, Andrew
    Reijneveld, Jaap C.
    Koller, Michael
    Flechtner, Henning
    Tomaszewski, Krzysztof A.
    Greimel, Eva
    Ganz, Patricia A.
    Ringash, Jolie
    Sasseville, Maxime
    O'Connor, Daniel
    Kluetz, Paul G.
    Campbell, Alicyn
    Tafuri, Giovanni
    Gronvold, Mogens
    Snyder, Claire
    Gotay, Carolyn
    Fallowfield, Dame Lesley
    Apostolidis, Kathi
    Wilson, Roger
    Stephens, Richard
    Oliver, Kathy
    Schunemann, Holger
    Calvert, Melanie
    Holzner, Bernhard
    Musoro, Jammbe Z.
    Wheelwright, Sally
    Martinelli, Francesca
    Dueck, Amylou C.
    Pe, Madeline
    Coens, Corneel
    Velikova, Galina
    Kulis, Dagmara
    Taphoorn, Martin J. B.
    Darlington, Anne-Sophie
    Lewis, Ian
    van de Poll-Franse, Lonneke
    EUROPEAN JOURNAL OF CANCER, 2019, 121 : 55 - 63
  • [43] Patient Reported Outcomes Assessment improves Quality of Life in Patients with Cirrhosis
    Verma, Manisha
    Navarro, Victor J.
    Stites, Shana
    HEPATOLOGY, 2017, 66 : 394A - 395A
  • [44] Utilizing Patient Reported Outcomes and Quality of Life Measures in the Management of Obesity
    Drummond, Madalene Dawson
    Anthamatten, Angelina
    Hande, Karen
    Choi, Leena
    JOURNAL OF DOCTORAL NURSING PRACTICE, 2022, 15 (01) : 57 - 64
  • [45] HEPATITIS C VIRUS PATIENT REPORTED OUTCOMES (HCVPRO): DEVELOPMENT AND VALIDATION OF A DISEASE-SPECIFIC PATIENT REPORTED OUTCOMES INSTRUMENT FOR HEALTH-RELATED QUALITY OF LIFE MEASUREMENT
    Baran, R. W.
    Dietz, B.
    Anderson, R. T.
    JOURNAL OF HEPATOLOGY, 2012, 56 : S342 - S343
  • [46] Patient Judgement of Change with Elective Surgery Correlates with Patient Reported Outcomes and Quality of Life
    Morris, Meg E.
    Atkinson, Victoria
    Woods, Jeffrey
    Myles, Paul S.
    Hodge, Anita
    Jones, Cathy H.
    Lloyd, Damien
    Rovtar, Vincent
    Clifford, Amanda M.
    Brusco, Natasha K.
    HEALTHCARE, 2022, 10 (06)
  • [47] Quality of life measurement in vitiligo. Position statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient Oriented Outcomes with external experts
    Chernyshov, Pavel, V
    Tomas-Aragones, Lucia
    Manolache, Liana
    Pustisek, Nives
    Salavastru, Carmen Maria
    Marron, Servando E.
    Bewley, Anthony
    Svensson, Ake
    Poot, Francoise
    Suru, Alina
    Salek, Sam S.
    Augustin, Matthias
    Szepietowski, Jacek C.
    Koumaki, Dimitra
    Katoulis, Alexander C.
    Sampogna, Francesca
    Abeni, Damiano
    Linder, Dennis Michael
    Speeckaert, Reinhart
    van Geel, Nanja
    Seneschal, Julien
    Ezzedine, Khaled
    Finlay, Andrew Y.
    JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2023, 37 (01) : 21 - 31
  • [48] Quality of life measurement in dermatology: A practical guide
    Finlay, AY
    BRITISH JOURNAL OF DERMATOLOGY, 1997, 136 (03) : 305 - 314
  • [49] Quality of life measurement in urticaria: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient-Oriented Outcomes and Urticaria and Angioedema
    Chernyshov, P. V.
    Finlay, A. Y.
    Tomas-Aragones, L.
    Zuberbier, T.
    Kocaturk, E.
    Manolache, L.
    Pustisek, N.
    Svensson, A.
    Marron, S. E.
    Sampogna, F.
    Bewley, A.
    Salavastru, C.
    Koumaki, D.
    Augustin, M.
    Linder, D.
    Abeni, D.
    Salek, S. S.
    Szepietowski, J.
    Jemec, G. B.
    JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2024, 38 (11) : 2056 - 2072
  • [50] BENEFITS OF PATIENT-REPORTED OUTCOMES IN DERMATOLOGY DRUG DEVELOPMENT
    Copleymerriman, C.
    Zelt, S.
    Clark, M.
    Gnanasakthy, A.
    VALUE IN HEALTH, 2015, 18 (03) : A184 - A184