PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions

被引:188
|
作者
DeWalt, Darren A. [1 ]
Gross, Heather E. [2 ]
Gipson, Debbie S. [3 ]
Selewski, David T. [3 ]
DeWitt, Esi Morgan [4 ]
Dampier, Carlton D. [5 ,6 ]
Hinds, Pamela S. [7 ]
Huang, I-Chan [8 ]
Thissen, David [9 ]
Varni, James W. [10 ,11 ]
机构
[1] Univ N Carolina, Div Gen Med & Clin Epidemiol, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
[2] Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
[3] Univ Michigan, CS Mott Childrens Hosp, Dept Pediat & Communicable Dis, Ann Arbor, MI 48109 USA
[4] Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Rheumatol, Cincinnati, OH 45229 USA
[5] Emory Univ, Dept Pediat, Atlanta, GA 30322 USA
[6] Childrens Healthcare Atlanta, AFLAC Canc & Blood Disorders Ctr, Atlanta, GA USA
[7] George Washington Univ, Childrens Natl Med Ctr, Washington, DC USA
[8] St Jude Childrens Res Hosp, Dept Epidemiol & Canc Control, Memphis, TN 38105 USA
[9] Univ N Carolina, Dept Psychol, Chapel Hill, NC 27599 USA
[10] Texas A&M Univ, Coll Med, Dept Pediat, College Stn, TX 77843 USA
[11] Texas A&M Univ, Coll Architecture, Dept Landscape Architecture & Urban Planning, College Stn, TX 77843 USA
基金
美国国家卫生研究院;
关键词
PROMIS; Pediatrics; Self-report; Patient-reported outcomes; Item response theory; QUALITY-OF-LIFE; ITEM RESPONSE THEORY; GENERIC CORE SCALES; CHILDHOOD-CANCER; OBESE CHILDREN; RELIABILITY; OUTCOMES; FEASIBILITY; VALIDITY; DISEASE;
D O I
10.1007/s11136-015-0953-3
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose To conduct a comparative analysis of eight pediatric self-report scales for ages 8-17 years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS (R)) in six pediatric chronic health conditions, using indicators of disease severity. Methods Pediatric patients (N = 1454) with asthma, cancer, chronic kidney disease, obesity, rheumatic disease, and sickle cell disease completed items from the PROMIS pediatric mobility, upper extremity functioning, depressive symptoms, anxiety, anger, peer relationships, pain interference, and fatigue self-report scales. Comparisons within the six pediatric chronic health conditions were conducted by examining differences in groups based on the disease severity using markers of severity that were specific to characteristics of each disease. A comparison was also made across diseases between children who had been recently hospitalized and those who had not. Results In general, there were differences in self-reported health outcomes within each chronic health condition, with patients who had higher disease severity showing worse outcomes. Across health conditions, when children with recent hospitalizations were compared with those who had not been hospitalized in the past 6 months, we found significant differences in the expected directions for all PROMIS domains, except anger. Conclusions PROMIS measures discriminate between different clinically meaningful subgroups within several chronic illnesses. Further research is needed to determine the responsiveness of the PROMIS pediatric scales to change over time.
引用
收藏
页码:2195 / 2208
页数:14
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