Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities

被引:30
|
作者
Pfeifer, Mariel A. [1 ]
Reiter, Eve Melanie [2 ]
Hendrickson, McKenna [3 ]
Stanton, Julie Dangremond [2 ]
机构
[1] Univ Georgia, Dept Plant Biol, Athens, GA 30602 USA
[2] Univ Georgia, Dept Cellular Biol, Athens, GA 30602 USA
[3] Smith Coll, Dept Psychol, Northampton, MA 01063 USA
基金
美国国家科学基金会;
关键词
Students with ADHD; Students with SLD; Attention-deficit; hyperactivity disorder; Specific learning disorder; Specific learning disability; Invisible disability; Hidden disability; Self-advocacy; Undergraduate STEM courses; COLLEGE-STUDENTS; QUALITATIVE RESEARCH; HIDDEN DISABILITIES; HIGH-SCHOOL; TECHNOLOGY; EDUCATION; SCIENCE; ACCOMMODATIONS; PERCEPTIONS; OUTCOMES;
D O I
10.1186/s40594-020-00233-4
中图分类号
G40 [教育学];
学科分类号
040101 ; 120403 ;
摘要
Background Students with disabilities are underrepresented in undergraduate science, technology, engineering, and mathematics (STEM) courses. Students with disabilities who engage in self-advocacy earn higher GPAs and are more likely to graduate from college compared to students with disabilities who do not engage in self-advocacy. We utilized Test's conceptual framework of self-advocacy, which breaks self-advocacy into four components: knowledge of self, knowledge of rights, communication, and leadership to investigate how students with invisible disabilities practice self-advocacy in undergraduate STEM courses. Through a partnership with a disability resource center (DRC), we recruited and interviewed 25 STEM majors who received accommodations for attention-deficit/hyperactivity disorder (ADHD) and/or a specific learning disorder (SLD). Data were collected using semi-structured interviews and analyzed using content analysis. Results We found evidence of all components of Test's conceptual framework of self-advocacy and operationalize each based on our participants' experiences. We identified novel components of self-advocacy for students with ADHD/SLD in undergraduate STEM courses, including knowledge of STEM learning contexts and knowledge of accommodations and the process to obtain them, as well as, a novel self-advocacy behavior, filling gaps. Filling gaps involved participants taking action to mitigate a perceived limitation in either their formal accommodations from the DRC or a perceived limitation in the instructional practices used in a STEM course. We also identified beliefs, such as view of disability and agency, which influenced the self-advocacy of our participants. We incorporated the emergent forms of self-advocacy into Test's conceptual framework to propose a revised model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. Conclusions We developed a revised conceptual model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. This conceptual model provides a foundation for researchers who wish to study self-advocacy in undergraduate STEM courses for students with ADHD/SLD in the future. It also offers insights for STEM instructors and service providers about the self-advocacy experiences of students with ADHD/SLD in undergraduate STEM courses. We propose hypotheses for additional study based on our conceptual model of self-advocacy. Implications for research and teaching are discussed.
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页数:21
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