health-care provider obligations;
relationships;
hermeneutic phenomenology;
moral distress;
D O I:
10.1038/jp.2008.96
中图分类号:
R71 [妇产科学];
学科分类号:
100211 ;
摘要:
Objective: To explore nurses' and physicians' end-of-life (EOL) experiences in the newborn intensive care unit. Study Design: A hermeneutic phenomenology of health-care providers' lived experiences with infant deaths in the newborn intensive care unit between January and August 2006 was conducted. Semistructured interviews were completed with individual providers. Demographic data were also collected. Analysis of themes and descriptive statistics were performed. Result: Twenty-one nurses and 11 physicians were interviewed. Providers described their experiences largely through an overall theme of 'creating the best possible experience' for parents. To support this theme, three subthemes (building relationships, preparing for the EOL and creating memories) were common between physicians and nurses. However, nurses and physicians articulated their roles and obligations differently within these subthemes. Additionally, three subthemes through which the providers described their personal experiences were found and these included moral distress, parental readiness and consent for autopsy. Conclusion: A primary finding of this study was that a common overall obligation among nurses and physicians was to create the best possible experience for parents. Despite this commonality, the two disciplines approached the EOL and accomplished their common obligation from different vantage points.
机构:
Oslo Metropolitan Univ, Fac Hlth Sci, Oslo, NorwayVejle Hosp, Dept Anaesthesiol & Intens Care, Beriderbakken 4, DK-7100 Vejle, Denmark
Halvorsen, Kristin
Jerpseth, Heidi
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机构:
Oslo Metropolitan Univ, Fac Hlth Sci, Oslo, NorwayVejle Hosp, Dept Anaesthesiol & Intens Care, Beriderbakken 4, DK-7100 Vejle, Denmark
Jerpseth, Heidi
Fridh, Isabell
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机构:
Univ Boras, Fac Caring Sci Work Life & Social Welf, Boras, SwedenVejle Hosp, Dept Anaesthesiol & Intens Care, Beriderbakken 4, DK-7100 Vejle, Denmark
Fridh, Isabell
Lind, Ranveig
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机构:
UiT Arctic Univ Norway, Tromso, Norway
Univ Hosp North Norway, Intens Care Unit, Tromso, NorwayVejle Hosp, Dept Anaesthesiol & Intens Care, Beriderbakken 4, DK-7100 Vejle, Denmark
机构:
Univ Washington, Harborview Med Ctr, Dept Med, Div Pulm & Crit Care Med, Seattle, WA 98104 USAUniv Washington, Harborview Med Ctr, Dept Med, Div Pulm & Crit Care Med, Seattle, WA 98104 USA
Rubenfeld, GD
Curtis, JR
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机构:
Univ Washington, Harborview Med Ctr, Dept Med, Div Pulm & Crit Care Med, Seattle, WA 98104 USAUniv Washington, Harborview Med Ctr, Dept Med, Div Pulm & Crit Care Med, Seattle, WA 98104 USA
机构:
Boston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
MGH Inst Hlth Profess, Boston, MA 02129 USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Hillier, Maureen M.
DeGrazia, Michele
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Neonatal Intens Care Unit, Boston, MA USA
Harvard Med Sch, Div Pediat, Boston, MA 02115 USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
DeGrazia, Michele
Mott, Sandra
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机构:
Boston Childrens Hosp, Boston, MA USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Mott, Sandra
Taylor, Matthew
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机构:
Boston Childrens Hosp, Simulator Program, Boston, MA USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Taylor, Matthew
Manning, Mary J.
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机构:
Boston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Manning, Mary J.
O'Brien, Mary
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机构:
Boston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
O'Brien, Mary
Schenkel, Sara R.
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机构:
Massachusetts Gen Hosp, Div Pediat Global Hlth, Boston, MA 02114 USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Schenkel, Sara R.
Cole, Alexandra
论文数: 0引用数: 0
h-index: 0
机构:
Boston Childrens Hosp, Cardiovasc & Crit Care Serv, Boston, MA USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
Cole, Alexandra
Hickey, Patricia A.
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h-index: 0
机构:
Harvard Med Sch, Div Pediat, Boston, MA 02115 USA
Boston Childrens Hosp, Cardiovasc & Crit Care Serv, Boston, MA USABoston Childrens Hosp, Med Surg Intens Care Unit, Boston, MA 02115 USA
机构:
Queens Univ Belfast, Sch Nursing & Midwifery, Belfast, Antrim, North IrelandQueens Univ Belfast, Ctr Infect & Immun, Sch Med Dent & Biomed Sci, Belfast, Antrim, North Ireland
Reid, Joanne
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机构:
Prior, Lindsay
McAuley, Danny
论文数: 0引用数: 0
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机构:
Royal Hosp, Belfast Hlth & Social Care Trust, Reg Intens Care Unit, Belfast, Antrim, North Ireland
Queens Univ Belfast, Sch Med Dent & Biomed Sci, Ctr Infect & Immun, Belfast, Antrim, North IrelandQueens Univ Belfast, Ctr Infect & Immun, Sch Med Dent & Biomed Sci, Belfast, Antrim, North Ireland
McAuley, Danny
Blackwood, Bronagh
论文数: 0引用数: 0
h-index: 0
机构:
Queens Univ Belfast, Sch Med Dent & Biomed Sci, Ctr Infect & Immun, Belfast, Antrim, North IrelandQueens Univ Belfast, Ctr Infect & Immun, Sch Med Dent & Biomed Sci, Belfast, Antrim, North Ireland