Disclosing Results to Genomic Research Participants: Differences That Matter

被引:8
|
作者
Blasimme, Alessandro [1 ]
Soulier, Alexandra [1 ]
Julia, Sophie [1 ]
Leonard, Samantha [1 ]
Cambon-Thomsen, Anne [1 ]
机构
[1] Univ Toulouse 3, Fac Med, INSERM, Dept Epidemiol & Sante Publ,UMR 1027, F-31062 Toulouse, France
来源
AMERICAN JOURNAL OF BIOETHICS | 2012年 / 12卷 / 10期
关键词
D O I
10.1080/15265161.2012.699149
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
引用
收藏
页码:20 / 22
页数:4
相关论文
共 50 条
  • [41] Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
    Isaac Kisiangani
    Shukri F. Mohamed
    Catherine Kyobutungi
    Paulina Tindana
    Anita Ghansah
    Michele Ramsay
    Gershim Asiki
    BMC Medical Ethics, 23
  • [42] Controversies among Cancer Registry Participants, Genomic Researchers, and Institutional Review Boards about Returning Participants' Genomic Results
    Edwards, Karen L.
    Goodman, Deborah
    Johnson, Catherine O.
    Wenzel, Lari
    Condit, Celeste
    Bowen, Deborah
    PUBLIC HEALTH GENOMICS, 2018, 21 (1-2) : 18 - 26
  • [43] Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
    Kisiangani, Isaac
    Mohamed, Shukri F.
    Kyobutungi, Catherine
    Tindana, Paulina
    Ghansah, Anita
    Ramsay, Michele
    Asiki, Gershim
    BMC MEDICAL ETHICS, 2022, 23 (01)
  • [44] Disclosing genetic research results after death of pediatric patients
    Sexton, Adrienne C.
    Metcalfe, Sylvia A.
    JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2008, 300 (14): : 1693 - 1695
  • [45] Health research participants' preferences for receiving research results
    Long, Christopher R.
    Stewart, M. Kathryn
    Cunningham, Thomas V.
    Warmack, T. Scott
    McElfish, Pearl A.
    CLINICAL TRIALS, 2016, 13 (06) : 582 - 591
  • [46] Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right
    Kohane, Isaac S.
    Taylor, Patrick L.
    SCIENCE TRANSLATIONAL MEDICINE, 2010, 2 (37)
  • [47] The impact of sex differences on genomic research
    Oertelt-Prigione, Sabine
    Mariman, Edwin
    INTERNATIONAL JOURNAL OF BIOCHEMISTRY & CELL BIOLOGY, 2020, 124
  • [48] Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank
    Breitkopf, Carmen Radecki
    Petersen, Gloria M.
    Wolf, Susan M.
    Chaffee, Kari G.
    Robinson, Marguerite E.
    Gordon, Deborah R.
    Lindor, Noralane M.
    Koenig, Barbara A.
    JOURNAL OF LAW MEDICINE & ETHICS, 2015, 43 (03): : 464 - 475
  • [49] Genomic research and wide data sharing: Views of prospective participants
    Trinidad, Susan Brown
    Fullerton, Stephanie M.
    Bares, Julie M.
    Jarvik, Gail P.
    Larson, Eric B.
    Burke, Wylie
    GENETICS IN MEDICINE, 2010, 12 (08) : 486 - 495
  • [50] Research participants’ attitudes towards the confidentiality of genomic sequence information
    Leila Jamal
    Julie C Sapp
    Katie Lewis
    Tatiane Yanes
    Flavia M Facio
    Leslie G Biesecker
    Barbara B Biesecker
    European Journal of Human Genetics, 2014, 22 : 964 - 968