CHALLENGES IN DEVELOPING AN OUTCOME MEASURES FRAMEWORK FOR PATIENT REGISTRIES

被引:0
|
作者
Gliklich, R. E. [1 ]
Karl, J. [1 ]
Leavy, M. B. [1 ]
Campion, D. M. [1 ]
Levy, D. [1 ]
Berliner, E. [2 ]
Khurana, L. L. [1 ]
Taylor, T. [1 ]
Hossfeld, W. [1 ]
Thompson, D.
机构
[1] Quintiles Outcome, Cambridge, MA USA
[2] AHRQ, Rockville, MD USA
关键词
D O I
暂无
中图分类号
F [经济];
学科分类号
02 ;
摘要
引用
收藏
页码:A265 / A265
页数:1
相关论文
共 50 条
  • [41] Surgical patient registries: scoping study of challenges and solutions
    Serban, Andreea Madalina
    Ionescu, Nicolae Sebastian
    JOURNAL OF PUBLIC HEALTH POLICY, 2023, 44 (04) : 523 - 534
  • [42] Establishing Patient Registries for Rare Diseases: Rationale and Challenges
    Boulanger, Vanessa
    Schlemmer, Marissa
    Rossov, Suzanne
    Seebald, Allison
    Gavin, Pamela
    PHARMACEUTICAL MEDICINE, 2020, 34 (03) : 185 - 190
  • [43] CORR Insights®: Collection and Reporting of Patient-reported Outcome Measures in Arthroplasty Registries: Multinational Survey and Recommendations
    Blumenfeld, Thomas J.
    CLINICAL ORTHOPAEDICS AND RELATED RESEARCH, 2021, 479 (10) : 2167 - 2168
  • [44] Challenges of regulatory requirements for patient registries in different countries
    Imrie, Jackie
    Patterson, Marc
    Green, Jim
    Mathieson, Toni
    Bolton, Shaun
    MOLECULAR GENETICS AND METABOLISM, 2019, 126 (02) : S77 - S78
  • [45] Surgical patient registries: scoping study of challenges and solutions
    Andreea Madalina Serban
    Nicolae Sebastian Ionescu
    Journal of Public Health Policy, 2023, 44 : 523 - 534
  • [46] Framework for Multistakeholder Patient Registries in the Field of Rare Diseases
    Schoenmakers, Daphne H.
    van den Berg, Sibren
    Timmers, Lonneke
    Adang, Laura A.
    Baumer, Tobias
    Bosch, Annet
    van de Casteele, Marc
    Datema, Mareen R.
    Dekker, Hanka
    Donnelly, Conan
    Driessens, Mariette H. E.
    Graessner, Holm
    Greger, Valerie
    Haddad, Tala
    Hoglinger, Gunter U.
    van den Hout, Hannerieke
    Jonker, Carla
    Langeveld, Mirjam
    Lambert, Laurie J.
    Neacy, Eileen
    Nieuwland, Marc
    Klockgether, Thomas
    van der Knaap, Marjo S.
    Papadopoulou, Andri
    Plueschke, Kelly
    van Rijn, Sanne
    Rosenberg, Noa
    Saunier-Vivar, Elise F.
    Vieira, Bruna dos Santos
    Hollak, Carla E. M.
    Goettsch, Wim G.
    Wolf, Nicole I.
    NEUROLOGY, 2024, 103 (06)
  • [47] Outcome Measures in Patient Care
    Popescu, H.
    Morgan, S.
    JOURNAL OF PROSTHETICS AND ORTHOTICS, 2020, 32 (2S) : 20 - 24
  • [48] Developing Patient-centered Outcome Measures for Evaluating Vasospasm in Aneurysmal Subarachnoid Hemorrhage
    Reichman, Melissa B.
    Greenberg, Eddie D.
    Gold, Rachel L.
    Sanelli, Pina C.
    ACADEMIC RADIOLOGY, 2009, 16 (05) : 541 - 545
  • [49] Developing patient-reported outcome measures for pain clinical trials: IMMPACT recommendations
    Turk, Dennis C.
    Dworkin, Robert H.
    Burke, Laurie B.
    Gershon, Richard
    Rothman, Margaret
    Scott, Jane
    Allen, Robert R.
    Atkinson, J. Hampton
    Chandler, Julie
    Cleeland, Charles
    Cowan, Penny
    Dimitrova, Rozalina
    Dionne, Raymond
    Farrar, John T.
    Haythornthwaite, Jennifer A.
    Hertz, Sharon
    Jadad, Alejandro R.
    Jensen, Mark P.
    Kellstein, David
    Kerns, Robert D.
    Manning, Donald C.
    Martin, Susan
    Max, Mitchell B.
    McDermott, Michael P.
    McGrath, Patrick
    Moulin, Dwight E.
    Nurmikko, Turo
    Quessy, Steve
    Raja, Srinivasa
    Rappaport, Bob A.
    Rauschkolb, Christine
    Robinson, James P.
    Royal, Mike A.
    Simon, Lee
    Stauffer, Joseph W.
    Stucki, Gerold
    Tollett, Jane
    von Stein, Thorsten
    Wallace, Mark S.
    Wernicke, Joachim
    White, Richard E.
    Williams, Amanda C.
    Witter, James
    Wyrwich, Kathleen W.
    PAIN, 2006, 125 (03) : 208 - 215
  • [50] Developing an International Standard Set of Patient-Reported Outcome Measures for Psychotic Disorders
    McKenzie, Emily
    Matkin, Lucy
    Fialho, Luz Sousa
    Emelurumonye, Ifeoma Nneka
    Gintner, Timea
    Ilesanmi, Christiana
    Jagger, Beth
    Quinney, Shannon
    Anderson, Elizabeth
    Baandrup, Lone
    Bakhshy, Amrit Kumar
    Brabban, Alison
    Coombs, Tim
    Correll, Christoph U.
    Cupitt, Caroline
    Keetharuth, Anju Devianee
    Lima, Dania Nimbe
    McCrone, Paul
    Moller, Mary
    Mulder, Cornelis L.
    Roe, David
    Sara, Grant
    Shokraneh, Farhad
    Sin, Jacqueline
    Woodberry, Kristen A.
    Addington, Donald
    PSYCHIATRIC SERVICES, 2022, 73 (03) : 249 - 258